Consensus nomenclature and abbreviation for anti-synthetase syndrome: an IMACS project.

Result code in IS VaVaI

<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F00023728%3A_____%2F25%3AN0000021" target="_blank" >RIV/00023728:_____/25:N0000021 - isvavai.cz</a>

Alternative codes found

RIV/00216208:11110/25:10498472

Result on the web

<a href="https://doi.org/10.1093/rheumatology/keaf229" target="_blank" >https://doi.org/10.1093/rheumatology/keaf229</a>

DOI - Digital Object Identifier

<a href="http://dx.doi.org/10.1093/rheumatology/keaf229" target="_blank" >10.1093/rheumatology/keaf229</a>

Result language

angličtina

Original language name

Consensus nomenclature and abbreviation for anti-synthetase syndrome: an IMACS project.

Original language description

The lack of uniform terminology and abbreviations for anti-synthetase syndrome has led to significant challenges in research and clinical practice. This study aimed to establish an international consensus on a standardized nomenclature and abbreviation among a diverse group of global myositis experts and patient representatives. This qualitative project was approved by the International Myositis Assessment and Clinical Studies Group (IMACS). Based on the outcomes of a literature review and preliminary survey, list of terms for nomenclature and abbreviations was finalized. Subsequently, two rounds of the Delphi survey were conducted among myositis experts and patient participants to ascertain current practices and preferences. Using Nominal Group Technique (NGT), the project steering committee developed a consensus nomenclature and abbreviation. A total of 241 and 132 myositis experts from six continents, 35 countries and 9 specialities participated in round 1 and round 2 of the Delphi survey, respectively. The results indicated a preference for the terms anti-synthetase syndrome, antisynthetase syndrome and anti-tRNA synthetase syndrome. The abbreviations ASS, ASyS and ASSD were most used, though ASS received notable disapproval. The steering committee, including twenty-five myositis experts and three patient representatives from diverse backgrounds and geographical locations, reached a consensus on 'anti-synthetase syndrome' as the preferred nomenclature and ASyS as the preferred abbreviation, with 100% and 93.1% votes, respectively. The terms anti-synthetase syndrome and ASyS should be adopted as the standard nomenclature and abbreviation in both research and clinical practice. This standardization is expected to increase consistency within the literature.

Czech name

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Czech description

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Type

J_imp - Article in a specialist periodical, which is included in the Web of Science database

CEP classification

—

OECD FORD branch

30226 - Rheumatology

Project

—

Continuities

V - Vyzkumna aktivita podporovana z jinych verejnych zdroju

Publication year

2025

Confidentiality

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Name of the periodical

RHEUMATOLOGY

ISSN

1462-0324

e-ISSN

1462-0332

Volume of the periodical

64

Issue of the periodical within the volume

9

Country of publishing house

GB - UNITED KINGDOM

Number of pages

7

Pages from-to

4930-4936

UT code for WoS article

001488427400001

EID of the result in the Scopus database

2-s2.0-105015353190