Prognostic awareness in advanced cancer patients and their caregivers: A longitudinal cohort study

Result code in IS VaVaI

<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F00064190%3A_____%2F21%3AN0000066" target="_blank" >RIV/00064190:_____/21:N0000066 - isvavai.cz</a>

Alternative codes found

RIV/00216208:11120/21:43921386 RIV/00216208:11110/21:10426505 RIV/00216208:11230/21:10426505 RIV/00064165:_____/21:10426505

Result on the web

<a href="http://dx.doi.org/10.1002/pon.5704" target="_blank" >http://dx.doi.org/10.1002/pon.5704</a>

DOI - Digital Object Identifier

<a href="http://dx.doi.org/10.1002/pon.5704" target="_blank" >10.1002/pon.5704</a>

Result language

angličtina

Original language name

Prognostic awareness in advanced cancer patients and their caregivers: A longitudinal cohort study

Original language description

Objective The aim of this study was to analyse longitudinal development of prognostic awareness in advanced cancer patients and their families. Methods This was a longitudinal cohort study, involving 134 adult cancer patients, 91 primary family caregivers and 21 treating oncologists. Key eligibility criterion for patients was life expectancy less than 1 year (estimated by their oncologists using the 12-month surprised question). Structured interviews, including tools to measure prognostic awareness, health information needs, and demographics were conducted face to face or via phone three times over 9 months. Forty-four patients completed all three phases of data collection. Results Only 16% of patients reported accurate prognostic awareness, 58% being partially aware. Prognostic awareness of both patients and family caregivers remained stable over the course of the study, with only small non-significant changes. Gender, education, type of cancer, spirituality or health information needs were not associated with the level of prognostic awareness. Family caregivers reported more accurate prognostic awareness, which was not associated with patients' own prognostic awareness (agreement rate 59%, weighted kappa 0.348, CI = 0.185-0.510). Conclusions Prognostic awareness appears to be a stable concept over the course of the illness. Clinicians must focus on the initial patients' understanding of the disease and be able to communicate the prognostic information effectively from the early stages of patients' trajectory.

Czech name

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Czech description

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Type

J_imp - Article in a specialist periodical, which is included in the Web of Science database

CEP classification

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OECD FORD branch

30204 - Oncology

Project

—

Continuities

V - Vyzkumna aktivita podporovana z jinych verejnych zdroju

Publication year

2021

Confidentiality

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Name of the periodical

PSYCHO-ONCOLOGY

ISSN

1057-9249

e-ISSN

1099-1611

Volume of the periodical

30

Issue of the periodical within the volume

9

Country of publishing house

GB - UNITED KINGDOM

Number of pages

8

Pages from-to

1449-1456

UT code for WoS article

000643413700001

EID of the result in the Scopus database

2-s2.0-85104822287