Technical solution for data collection, data safety and data privacy legislation: experiences from the SWEET study

Result code in IS VaVaI

<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F00064203%3A_____%2F12%3A8792" target="_blank" >RIV/00064203:_____/12:8792 - isvavai.cz</a>

Alternative codes found

RIV/00216208:11130/12:8792

Result on the web

<a href="http://dx.doi.org/10.1111/j.1399-5448.2012.00911.x" target="_blank" >http://dx.doi.org/10.1111/j.1399-5448.2012.00911.x</a>

DOI - Digital Object Identifier

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Result language

angličtina

Original language name

Technical solution for data collection, data safety and data privacy legislation: experiences from the SWEET study

Original language description

BACKGROUND: One of the most important tasks of the SWEET study is benchmarking the data collected. Information on the occurrence of the disease of diabetes, the treatment, and their outcomes in children from the different member states of European Union(EU) is crucial. How the collection of data is realized is essential, concerning both the technical issues and the results. The creation of SWEET Centers of Reference (CoR), all over Europe will be facilitated by the access to safe data collection, wherelegal aspects and privacy are ascertained. OBJECTIVE: To describe the rationale for- and the technical procedure in the data collection implementation, in the SWEET study. SUBJECTS: Selected data on all patients treated at SWEET CoR are collected. METHODS: The SWEET project data collection and management system, consists of modular components for data collection, online data interchange, and a database for statistical analysis. CONCLUSION: The SWEET study and the organization of CoR aim

Czech name

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Czech description

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Type

J_x - Unclassified - Peer-reviewed scientific article (Jimp, Jsc and Jost)

CEP classification

FB - Endocrinology, diabetology, metabolism, nutrition

OECD FORD branch

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Project

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Continuities

Z - Vyzkumny zamer (s odkazem do CEZ)

Publication year

2012

Confidentiality

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Name of the periodical

Pediatric Diabetes

ISSN

1399-543X

e-ISSN

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Volume of the periodical

13

Issue of the periodical within the volume

Suppl. 16

Country of publishing house

DK - DENMARK

Number of pages

10

Pages from-to

39-48

UT code for WoS article

000308100400006

EID of the result in the Scopus database

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