European Cystic Fibrosis Society Standards of Care: Framework for the Cystic Fibrosis Centre

Result code in IS VaVaI

<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F00064203%3A_____%2F14%3A10292993" target="_blank" >RIV/00064203:_____/14:10292993 - isvavai.cz</a>

Alternative codes found

RIV/00216208:11130/14:10292993

Result on the web

<a href="http://dx.doi.org/10.1016/j.jcf.2014.03.009" target="_blank" >http://dx.doi.org/10.1016/j.jcf.2014.03.009</a>

DOI - Digital Object Identifier

<a href="http://dx.doi.org/10.1016/j.jcf.2014.03.009" target="_blank" >10.1016/j.jcf.2014.03.009</a>

Result language

angličtina

Original language name

European Cystic Fibrosis Society Standards of Care: Framework for the Cystic Fibrosis Centre

Original language description

A significant increase in life expectancy in successive birth cohorts of people with cystic fibrosis (CF) is a result of more effective treatment for the disease. It is also now widely recognized that outcomes for patients cared for in specialist CF Centres are better than for those who are not. Key to the effectiveness of the specialist CF Centre is the multidisciplinary team (MDT), which should include consultants, clinical nurse specialist, microbiologist, physiotherapist, dietitian, pharmacist, clinical psychologist, social worker, clinical geneticist and allied healthcare professionals, all of whom should be experienced in CF care. Members of the MDT are also expected to keep up to date with developments in CF through continued professional development, attendance at conferences, auditing and involvement in research. Specialists CF Centres should also network with other Centres both nationally and internationally, and feed Centre data to registries in order to further the understa

Czech name

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Czech description

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Type

J_x - Unclassified - Peer-reviewed scientific article (Jimp, Jsc and Jost)

CEP classification

EB - Genetics and molecular biology

OECD FORD branch

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Project

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Continuities

I - Institucionalni podpora na dlouhodoby koncepcni rozvoj vyzkumne organizace

Publication year

2014

Confidentiality

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Name of the periodical

Journal of Cystic Fibrosis

ISSN

1569-1993

e-ISSN

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Volume of the periodical

13

Issue of the periodical within the volume

Supplement 1

Country of publishing house

NL - THE KINGDOM OF THE NETHERLANDS

Number of pages

20

Pages from-to

"S3"-"S22"

UT code for WoS article

000338814100002

EID of the result in the Scopus database

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