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Standards for the care of people with cystic fibrosis (CF): A timely and accurate diagnosis

The result's identifiers

  • Result code in IS VaVaI

    <a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F00064203%3A_____%2F23%3A10470187" target="_blank" >RIV/00064203:_____/23:10470187 - isvavai.cz</a>

  • Alternative codes found

    RIV/00216208:11130/23:10470187

  • Result on the web

    <a href="https://verso.is.cuni.cz/pub/verso.fpl?fname=obd_publikace_handle&handle=y6zcrI.8wK" target="_blank" >https://verso.is.cuni.cz/pub/verso.fpl?fname=obd_publikace_handle&handle=y6zcrI.8wK</a>

  • DOI - Digital Object Identifier

    <a href="http://dx.doi.org/10.1016/j.jcf.2023.09.008" target="_blank" >10.1016/j.jcf.2023.09.008</a>

Alternative languages

  • Result language

    angličtina

  • Original language name

    Standards for the care of people with cystic fibrosis (CF): A timely and accurate diagnosis

  • Original language description

    There is considerable activity with respect to diagnosis in the field of cystic fibrosis (CF). This relates primarily to developments in newborn bloodspot screening (NBS), more extensive gene analysis and improved characterisation of CFTR-related disorder (CFTR-RD). This is particularly pertinent with respect to accessibility to variant-specific therapy (VST), a transformational intervention for people with CF with eligible CFTR gene variants. This advance reinforces the need for a timely and accurate diagnosis. In the future, there is potential for trials to assess effectiveness of variant-specific therapy for CFTR-RD. The guidance in this paper reaffirms previous standards, clarifies a number of issues, and integrates emerging evidence. Timely and accurate diagnosis has never been more important for people with CF.

  • Czech name

  • Czech description

Classification

  • Type

    J<sub>imp</sub> - Article in a specialist periodical, which is included in the Web of Science database

  • CEP classification

  • OECD FORD branch

    30303 - Infectious Diseases

Result continuities

  • Project

  • Continuities

    I - Institucionalni podpora na dlouhodoby koncepcni rozvoj vyzkumne organizace

Others

  • Publication year

    2023

  • Confidentiality

    S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Data specific for result type

  • Name of the periodical

    Journal of Cystic Fibrosis

  • ISSN

    1569-1993

  • e-ISSN

    1873-5010

  • Volume of the periodical

    22

  • Issue of the periodical within the volume

    6

  • Country of publishing house

    NL - THE KINGDOM OF THE NETHERLANDS

  • Number of pages

    6

  • Pages from-to

    963-968

  • UT code for WoS article

    001129555000001

  • EID of the result in the Scopus database

    2-s2.0-85173888647