The Open Brain Consent: Informing research participants and obtaining consent to share brain imaging data

Result code in IS VaVaI
<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F00159816%3A_____%2F21%3A00075186" target="_blank" >RIV/00159816:_____/21:00075186 - isvavai.cz</a>
Alternative codes found
RIV/00216224:14110/21:00122118
Result on the web
<a href="https://onlinelibrary.wiley.com/doi/10.1002/hbm.25351" target="_blank" >https://onlinelibrary.wiley.com/doi/10.1002/hbm.25351</a>
DOI - Digital Object Identifier
<a href="http://dx.doi.org/10.1002/hbm.25351" target="_blank" >10.1002/hbm.25351</a>

Result language
angličtina
Original language name
The Open Brain Consent: Informing research participants and obtaining consent to share brain imaging data
Original language description
Having the means to share research data openly is essential to modern science. For human research, a key aspect in this endeavor is obtaining consent from participants, not just to take part in a study, which is a basic ethical principle, but also to share their data with the scientific community. To ensure that the participants' privacy is respected, national and/or supranational regulations and laws are in place. It is, however, not always clear to researchers what the implications of those are, nor how to comply with them. The Open Brain Consent (https://open-brain-consent.readthedocs.io) is an international initiative that aims to provide researchers in the brain imaging community with information about data sharing options and tools. We present here a short history of this project and its latest developments, and share pointers to consent forms, including a template consent form that is compliant with the EU general data protection regulation. We also share pointers to an associated data user agreement that is not only useful in the EU context, but also for any researchers dealing with personal (clinical) data elsewhere.
Czech name
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Czech description
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Type
J<sub>imp</sub> - Article in a specialist periodical, which is included in the Web of Science database
CEP classification
—
OECD FORD branch
30103 - Neurosciences (including psychophysiology)

Project
<a href="/en/project/LTC20027" target="_blank" >LTC20027: Mapping of glioma heterogeneity and infiltration extend by MR imaging biomarkers</a><br>
Continuities
P - Projekt vyzkumu a vyvoje financovany z verejnych zdroju (s odkazem do CEP)

Publication year
2021
Confidentiality
S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

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