Biobanking Across Europe Post-GDPR: A Deliberately Fragmented Landscape

Result code in IS VaVaI
<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F00209805%3A_____%2F21%3A00080609" target="_blank" >RIV/00209805:_____/21:00080609 - isvavai.cz</a>
Result on the web
<a href="https://link.springer.com/chapter/10.1007/978-3-030-49388-2_22" target="_blank" >https://link.springer.com/chapter/10.1007/978-3-030-49388-2_22</a>
DOI - Digital Object Identifier
<a href="http://dx.doi.org/10.1007/978-3-030-49388-2_22" target="_blank" >10.1007/978-3-030-49388-2_22</a>

Result language
angličtina
Original language name
Biobanking Across Europe Post-GDPR: A Deliberately Fragmented Landscape
Original language description
This chapter seeks to provide insight into the ways in which Member States leveraged the regulatory discretion afforded to them by the GDPR. Specifically, it reviews the biobank regulatory environment; whether and how derogations under Article 89(2) GDPR are enabled; the legal basis for scientific research and the role of consent in biobanking post-GDPR; the balance between individual rights and public interest in national law; and finally, the GDPR's impact and future possibilities for biobanking. In exercising self-determination, Member States can, to a certain extent, align data protection requirements with their values and aspirations. Such alignment, though, could jeopardize collaborative research. In light of the need to bridge divergent legal and ethical requirements at a national and supranational level, the role of Research Ethics Committees (RECs) might prove to be essential.
Czech name
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Czech description
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Project
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Continuities
I - Institucionalni podpora na dlouhodoby koncepcni rozvoj vyzkumne organizace

Publication year
2021
Confidentiality
S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

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