Building a network of ADPKD reference centres across Europe: the EuroCYST initiative
The result's identifiers
Result code in IS VaVaI
<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F00216208%3A11110%2F14%3A10282531" target="_blank" >RIV/00216208:11110/14:10282531 - isvavai.cz</a>
Alternative codes found
RIV/00064165:_____/14:10282531
Result on the web
<a href="http://dx.doi.org/10.1093/ndt/gfu091" target="_blank" >http://dx.doi.org/10.1093/ndt/gfu091</a>
DOI - Digital Object Identifier
<a href="http://dx.doi.org/10.1093/ndt/gfu091" target="_blank" >10.1093/ndt/gfu091</a>
Alternative languages
Result language
angličtina
Original language name
Building a network of ADPKD reference centres across Europe: the EuroCYST initiative
Original language description
Background. Autosomal dominant polycystic kidney disease (ADPKD) is the most common monogenic inherited kidney disease, affecting an estimated 600 000 individuals in Europe. The disease is characterized by age-dependent development of a multiple cysts inthe kidneys, ultimately leading to end-stage renal failure and the need of renal replacement therapy in the majority of patients, typically by the fifth or sixth decade of life. The variable disease course, even within the same family, remains largely unexplained. Similarly, assessing disease severity and prognosis in an individual with ADPKD remains difficult. Epidemiological studies are limited due to the fragmentation of ADPKD research in Europe. Methods. The EuroCYST initiative aims: (i) to harmonize and develop common standards for ADPKD research by starting a collaborative effort to build a network of ADPKD reference centres across Europe and (ii) to establish a multicentric observational cohort of ADPKD patients. This cohort wil
Czech name
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Czech description
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Classification
Type
J<sub>x</sub> - Unclassified - Peer-reviewed scientific article (Jimp, Jsc and Jost)
CEP classification
FE - Other fields of internal medicine
OECD FORD branch
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Result continuities
Project
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Continuities
V - Vyzkumna aktivita podporovana z jinych verejnych zdroju
Others
Publication year
2014
Confidentiality
S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů
Data specific for result type
Name of the periodical
Nephrology Dialysis Transplantation
ISSN
0931-0509
e-ISSN
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Volume of the periodical
29
Issue of the periodical within the volume
suppl.4
Country of publishing house
GB - UNITED KINGDOM
Number of pages
7
Pages from-to
26-32
UT code for WoS article
000342940300004
EID of the result in the Scopus database
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