Between Pain and Distrust: The Social Context of Contested Illnesses Viewed through the Case of Fibromyalgia
The result's identifiers
Result code in IS VaVaI
<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F00216208%3A11230%2F25%3A10505145" target="_blank" >RIV/00216208:11230/25:10505145 - isvavai.cz</a>
Result on the web
<a href="https://verso.is.cuni.cz/pub/verso.fpl?fname=obd_publikace_handle&handle=O.6GIczmKT" target="_blank" >https://verso.is.cuni.cz/pub/verso.fpl?fname=obd_publikace_handle&handle=O.6GIczmKT</a>
DOI - Digital Object Identifier
<a href="http://dx.doi.org/10.31577/sociologia.2025.57.5.14" target="_blank" >10.31577/sociologia.2025.57.5.14</a>
Alternative languages
Result language
čeština
Original language name
Mezi bolestí a nedůvěrou: Sociální kontext sporných onemocnění na příkladu fibromyalgie
Original language description
This study explores the illness narratives of individuals diagnosed with fibromyalgia, focusing on how the condition's invisibility and the challenges surrounding the diagnostic process shape patients' everyday experiences and their inter-actions with healthcare and social systems. Grounded in the framework of the sociology of diagnosis, the study highlights how medical diagnoses are not merely clinical acts but are influenced by socio-political contexts, reflecting power dynamics between patients and physicians and embodying societal norms around illness and normality. Fibromyalgia, as a "contested illness," intensifies these dynamics, revealing the complexities of diagnosing conditions that lack clinical evidence. Through in-depth interviews with 10 participants diagnosed with fibromyalgia, the study examines how their subjective experiences of illness affect their trust in medical expertise and the broader social system, contributing to feelings of invalidation and a breakdown of institutional trust. The findings underscore the broader implications of contested diagnoses for the construction of illness meanings and access to social and medical resources.
Czech name
Mezi bolestí a nedůvěrou: Sociální kontext sporných onemocnění na příkladu fibromyalgie
Czech description
This study explores the illness narratives of individuals diagnosed with fibromyalgia, focusing on how the condition's invisibility and the challenges surrounding the diagnostic process shape patients' everyday experiences and their inter-actions with healthcare and social systems. Grounded in the framework of the sociology of diagnosis, the study highlights how medical diagnoses are not merely clinical acts but are influenced by socio-political contexts, reflecting power dynamics between patients and physicians and embodying societal norms around illness and normality. Fibromyalgia, as a "contested illness," intensifies these dynamics, revealing the complexities of diagnosing conditions that lack clinical evidence. Through in-depth interviews with 10 participants diagnosed with fibromyalgia, the study examines how their subjective experiences of illness affect their trust in medical expertise and the broader social system, contributing to feelings of invalidation and a breakdown of institutional trust. The findings underscore the broader implications of contested diagnoses for the construction of illness meanings and access to social and medical resources.
Classification
Type
J<sub>imp</sub> - Article in a specialist periodical, which is included in the Web of Science database
CEP classification
—
OECD FORD branch
50401 - Sociology
Result continuities
Project
<a href="/en/project/LX22NPO5101" target="_blank" >LX22NPO5101: The National Institute for Research on the Socioeconomic Impact of Diseases and Systemic Risks</a><br>
Continuities
P - Projekt vyzkumu a vyvoje financovany z verejnych zdroju (s odkazem do CEP)
Others
Publication year
2025
Confidentiality
S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů
Data specific for result type
Name of the periodical
Sociológia
ISSN
0049-1225
e-ISSN
1336-8613
Volume of the periodical
57
Issue of the periodical within the volume
5
Country of publishing house
SK - SLOVAKIA
Number of pages
23
Pages from-to
387-409
UT code for WoS article
001599927500001
EID of the result in the Scopus database
2-s2.0-105023908163