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Perspectives on family caregiving of people aging with intellectual disability affected by dementia: Commentary from the International Summit on Intellectual Disability and Dementia

The result's identifiers

  • Result code in IS VaVaI

    <a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F00216208%3A11240%2F18%3A10386406" target="_blank" >RIV/00216208:11240/18:10386406 - isvavai.cz</a>

  • Result on the web

    <a href="https://doi.org/10.1080/01634372.2018.1454563" target="_blank" >https://doi.org/10.1080/01634372.2018.1454563</a>

  • DOI - Digital Object Identifier

    <a href="http://dx.doi.org/10.1080/01634372.2018.1454563" target="_blank" >10.1080/01634372.2018.1454563</a>

Alternative languages

  • Result language

    angličtina

  • Original language name

    Perspectives on family caregiving of people aging with intellectual disability affected by dementia: Commentary from the International Summit on Intellectual Disability and Dementia

  • Original language description

    This article, an output of the 2016 International Summit on Intellectual Disability and Dementia, examines familial caregiving situations within the context of a support-staging model for adults with intellectual disability (ID) affected by dementia. Seven narratives offer context to this support-staging model to interpret situations experienced by caregivers. The multidimensional model has two fundamental aspects: identifying the role and nature of caregiving as either primary (direct) or secondary (supportive); and defining how caregiving is influenced by stage of dementia. We propose staging can affect caregiving via different expressions: (1) the &quot;diagnostic phase,&quot; (2) the &quot;explorative phase,&quot; (3) the &quot;adaptive phase,&quot; and (4) the &quot;closure phase.&quot; The international narratives illustrate direct and indirect caregiving with commonality being extent of caregiver involvement and attention to the needs of an adult with ID. We conclude that the model is the first to empirically formalize the variability of caregiving within families of people with ID that is distinct from other caregiving groups, and that many of these caregivers have idiosyncratic needs. A support-staging model that recognizes the changing roles and demands of carers of people with ID and dementia can be useful in constructing research, defining family-based support services, and setting public policy.

  • Czech name

  • Czech description

Classification

  • Type

    J<sub>imp</sub> - Article in a specialist periodical, which is included in the Web of Science database

  • CEP classification

  • OECD FORD branch

    30227 - Geriatrics and gerontology

Result continuities

  • Project

  • Continuities

    I - Institucionalni podpora na dlouhodoby koncepcni rozvoj vyzkumne organizace

Others

  • Publication year

    2018

  • Confidentiality

    S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Data specific for result type

  • Name of the periodical

    Journal of Gerontological Social Work [online]

  • ISSN

    1540-4048

  • e-ISSN

  • Volume of the periodical

    61

  • Issue of the periodical within the volume

    4

  • Country of publishing house

    DE - GERMANY

  • Number of pages

    21

  • Pages from-to

    411-431

  • UT code for WoS article

    000434859400005

  • EID of the result in the Scopus database

    2-s2.0-85044466586