Perspectives on family caregiving of people aging with intellectual disability affected by dementia: Commentary from the International Summit on Intellectual Disability and Dementia

Result code in IS VaVaI

<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F00216208%3A11240%2F18%3A10386406" target="_blank" >RIV/00216208:11240/18:10386406 - isvavai.cz</a>

Result on the web

<a href="https://doi.org/10.1080/01634372.2018.1454563" target="_blank" >https://doi.org/10.1080/01634372.2018.1454563</a>

DOI - Digital Object Identifier

<a href="http://dx.doi.org/10.1080/01634372.2018.1454563" target="_blank" >10.1080/01634372.2018.1454563</a>

Result language

angličtina

Original language name

Perspectives on family caregiving of people aging with intellectual disability affected by dementia: Commentary from the International Summit on Intellectual Disability and Dementia

Original language description

This article, an output of the 2016 International Summit on Intellectual Disability and Dementia, examines familial caregiving situations within the context of a support-staging model for adults with intellectual disability (ID) affected by dementia. Seven narratives offer context to this support-staging model to interpret situations experienced by caregivers. The multidimensional model has two fundamental aspects: identifying the role and nature of caregiving as either primary (direct) or secondary (supportive); and defining how caregiving is influenced by stage of dementia. We propose staging can affect caregiving via different expressions: (1) the &quot;diagnostic phase,&quot; (2) the &quot;explorative phase,&quot; (3) the &quot;adaptive phase,&quot; and (4) the &quot;closure phase.&quot; The international narratives illustrate direct and indirect caregiving with commonality being extent of caregiver involvement and attention to the needs of an adult with ID. We conclude that the model is the first to empirically formalize the variability of caregiving within families of people with ID that is distinct from other caregiving groups, and that many of these caregivers have idiosyncratic needs. A support-staging model that recognizes the changing roles and demands of carers of people with ID and dementia can be useful in constructing research, defining family-based support services, and setting public policy.

Czech name

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Czech description

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Type

J_imp - Article in a specialist periodical, which is included in the Web of Science database

CEP classification

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OECD FORD branch

30227 - Geriatrics and gerontology

Project

—

Continuities

I - Institucionalni podpora na dlouhodoby koncepcni rozvoj vyzkumne organizace

Publication year

2018

Confidentiality

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Name of the periodical

Journal of Gerontological Social Work [online]

ISSN

1540-4048

e-ISSN

—

Volume of the periodical

61

Issue of the periodical within the volume

4

Country of publishing house

DE - GERMANY

Number of pages

21

Pages from-to

411-431

UT code for WoS article

000434859400005

EID of the result in the Scopus database

2-s2.0-85044466586