Involving children and young people in clinical research through the forum of a European Young Persons' Advisory Group: needs and challenges

Result code in IS VaVaI

<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F00216224%3A14110%2F18%3A00121483" target="_blank" >RIV/00216224:14110/18:00121483 - isvavai.cz</a>

Result on the web

<a href="https://onlinelibrary.wiley.com/doi/full/10.1111/fcp.12360" target="_blank" >https://onlinelibrary.wiley.com/doi/full/10.1111/fcp.12360</a>

DOI - Digital Object Identifier

<a href="http://dx.doi.org/10.1111/fcp.12360" target="_blank" >10.1111/fcp.12360</a>

Result language

angličtina

Original language name

Involving children and young people in clinical research through the forum of a European Young Persons' Advisory Group: needs and challenges

Original language description

Children and young people are seen as fundamental to the design and delivery of clinical research as active and reflective participants. In Europe, involvement of children and young people in clinical research is promoted extensively in order to engage young people in research as partners and to give them a voice to raise their own issues or opinions and for their involvement in planning and decision making in addition to learning research skills. Children and young people can be trained in clinical research through participation in young person advisory groups (YPAGs). Members of YPAGs assist other children and young people to learn about clinical research and share their experience and point of view with researchers, thereby possibly influencing all phases of research including the development and prioritization of research questions, design and methods, recruitment plans, and strategies for results dissemination. In the long term, the expansion of YPAGs in Europe will serve as a driving force for refining pediatric clinical research. It will help in a better definition of research projects according to the patients' needs. Furthermore, direct engagement of children and young people in research will be favorable to both researchers and young people.

Czech name

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Czech description

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Type

J_imp - Article in a specialist periodical, which is included in the Web of Science database

CEP classification

—

OECD FORD branch

30104 - Pharmacology and pharmacy

Project

—

Continuities

—

Publication year

2018

Confidentiality

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Name of the periodical

FUNDAMENTAL &amp; CLINICAL PHARMACOLOGY

ISSN

0767-3981

e-ISSN

1472-8206

Volume of the periodical

32

Issue of the periodical within the volume

4

Country of publishing house

US - UNITED STATES

Number of pages

6

Pages from-to

357-362

UT code for WoS article

000438025300002

EID of the result in the Scopus database

2-s2.0-85046545902