European Joint Programme Rare Diseases NSS/ECRIN
The result's identifiers
Result code in IS VaVaI
<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F00216224%3A14110%2F21%3A00123781" target="_blank" >RIV/00216224:14110/21:00123781 - isvavai.cz</a>
Result on the web
<a href="https://ecrin.org/node/1410" target="_blank" >https://ecrin.org/node/1410</a>
DOI - Digital Object Identifier
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Alternative languages
Result language
angličtina
Original language name
European Joint Programme Rare Diseases NSS/ECRIN
Original language description
Rare diseases are a major challenge that requires integrated and collaborative efforts from a wide range of stakeholders. To take rare disease collaborative research in Europe to the next level and support achievement of the IRDiRC 2027 goals, the European Commission has approved the European Joint Programme on Rare Diseases (EJP-RD), an EU-wide and patient-centred initiative to foster rare disease research from bench to bedside and back. The programme, due to launch in January 2019, will receive 55 million EUR over 5 years to establish a comprehensive strategy covering funding, research, data, training, tools and clinical aspects to increase the efficiency of results use, diagnosis, drug discovery, patient care and to empowering all stakeholders.
Czech name
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Czech description
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Classification
Type
M - Conference organization
CEP classification
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OECD FORD branch
30230 - Other clinical medicine subjects
Result continuities
Project
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Continuities
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Others
Publication year
2021
Confidentiality
S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů
Data specific for result type
Event location
ONLINE
Event country
CZ - CZECH REPUBLIC
Event starting date
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Event ending date
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Total number of attendees
275
Foreign attendee count
200
Type of event by attendee nationality
EUR - Evropská akce