Mapping the burden on caregivers of people with epilepsy during the COVID-19 pandemic - pilot study

Result code in IS VaVaI

<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F00216224%3A14110%2F24%3A00135642" target="_blank" >RIV/00216224:14110/24:00135642 - isvavai.cz</a>

Result on the web

<a href="https://ceskoslovenskapsychologie.cz/index.php/csps/article/view/421" target="_blank" >https://ceskoslovenskapsychologie.cz/index.php/csps/article/view/421</a>

DOI - Digital Object Identifier

<a href="http://dx.doi.org/10.51561/cspsych.68.1.96" target="_blank" >10.51561/cspsych.68.1.96</a>

Result language

angličtina

Original language name

Mapping the burden on caregivers of people with epilepsy during the COVID-19 pandemic - pilot study

Original language description

Objectives. The combination of epilepsy, intellectual disability, and other psychiatric comorbidities disorders represents an extreme burden on their families and lay caregivers. The study aimed to investigate previously missing data on the burden and level of stress lay caregivers of patients with epilepsy and mental/intellectual disability and possible changes during the COVID-19 pandemic. Methods. The unicentric pilot study in lay caregivers of dispensed patients with epilepsy and concurrent mental/intellectual disability in an Epilepsy Center focused on lay caregivers burden. Caregiver burden was subjectively assessed for a period before and during the COVID-19 pandemic using the Caregiver Burden Scale. The Chi-Square Test was used for statistical evaluation at a significance level of 0.05. Results. Since the beginning of the COVID-19 pandemic, 526 patients were dispensed with the principal diagnosis of G40.* in the selected center; 46 lay caregivers were included in the study (9 males, and 37 females; the patient’s average age was 52.1 years). Due to the limitation of respite services, 25 (54.3%) caregivers reported worsening economic situations, and 31 (67.4%) reported increased stress levels. Increased caregiver burden during the COVID-19 pandemic was verified for walking (15 cases, p = 0.001), dressing, and bathing (12 cases, p = 0.010) activities. Conclusion. The obtained results confirmed the high dependency rate of patients and identified several factors (impaired mobility, falls, aggression, fear of COVID-19 disease) that increase the level of burden and stress in their caregivers due to the inability to use respite care and common tools for external assistance in care. Worsening socioeconomic situation and increased use of antidepressants by caregivers have been identified. The analysis also confirmed differences in the availability of respite care by place of residence at the national level.

Czech name

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Czech description

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Type

J_imp - Article in a specialist periodical, which is included in the Web of Science database

CEP classification

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OECD FORD branch

30304 - Public and environmental health

Project

—

Continuities

S - Specificky vyzkum na vysokych skolach<br>I - Institucionalni podpora na dlouhodoby koncepcni rozvoj vyzkumne organizace

Publication year

2024

Confidentiality

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Name of the periodical

Československá psychologie

ISSN

0009-062X

e-ISSN

1804-6436

Volume of the periodical

68

Issue of the periodical within the volume

1

Country of publishing house

CZ - CZECH REPUBLIC

Number of pages

11

Pages from-to

96-106

UT code for WoS article

001180803800001

EID of the result in the Scopus database

2-s2.0-85187664788