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Satisfaction of patients with severe multiple sclerosis and their family members with palliative care: Interventinal study

The result's identifiers

  • Result code in IS VaVaI

    <a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F00843989%3A_____%2F21%3AE0109173" target="_blank" >RIV/00843989:_____/21:E0109173 - isvavai.cz</a>

  • Result on the web

    <a href="https://journals.sagepub.com/doi/10.1177/1049909120985422" target="_blank" >https://journals.sagepub.com/doi/10.1177/1049909120985422</a>

  • DOI - Digital Object Identifier

    <a href="http://dx.doi.org/10.1177/1049909120985422" target="_blank" >10.1177/1049909120985422</a>

Alternative languages

  • Result language

    angličtina

  • Original language name

    Satisfaction of patients with severe multiple sclerosis and their family members with palliative care: Interventinal study

  • Original language description

    Background: Patients with MS should be provided palliative care, which could help them manage symptoms more efficiently and could solve some psychosocial problems. Evaluating the satisfaction with provided care may be one of the factors of the quality of care evaluation. Aim: The aim of this controlled intervention study was to determine the factors affecting one's satisfaction with care in patients in advanced stages of MS and their caregivers. Furthermore, the aim was to study the difference in the satisfaction of patients and family members with the provided specialized palliative care, as opposed to the standard care. Methods: The sample consisted of 103 patients with MS who were randomized to either a palliative care intervention or the control group. Family members of each patient were invited in the study, and 97 caregivers agreed to participe. The patients in the intervention group were provided with neuropalliative care in the form of consultations with a multidisciplinary palliative team. A modified questionnaire, CANHELP Lite, was used to collect data. Patients and family members completed the questionnaire 3 months after the intervention. Results: The patients and caregivers in the intervention group expressed significantly greater satisfaction in all analyzed areas (p = 0.000-0.002). The provided intervention predicted the satisfaction in the domains of a relationship with the doctor, disease management, and decision-making/communication. Another important predictor of the satisfaction in all domains was the functional state of the patient. Conclusion: Targeted consultations resulted in the greater satisfaction of patients with MS and their caregivers with the provided care.

  • Czech name

  • Czech description

Classification

  • Type

    J<sub>imp</sub> - Article in a specialist periodical, which is included in the Web of Science database

  • CEP classification

  • OECD FORD branch

    30307 - Nursing

Result continuities

  • Project

    <a href="/en/project/NV17-29447A" target="_blank" >NV17-29447A: A NEUROPALLIATIVE REHABILITATION APPROACH TO PRESERVE THE QUALITY OF LIFE IN PATIENTS WITH AN ADVANCED STAGE OF SELECTED NEUROLOGICAL DISEASES</a><br>

  • Continuities

    P - Projekt vyzkumu a vyvoje financovany z verejnych zdroju (s odkazem do CEP)

Others

  • Publication year

    2021

  • Confidentiality

    S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Data specific for result type

  • Name of the periodical

    American journal of hospice & palliative medicine®

  • ISSN

    1049-9091

  • e-ISSN

    1938-2715

  • Volume of the periodical

    38

  • Issue of the periodical within the volume

    11

  • Country of publishing house

    GB - UNITED KINGDOM

  • Number of pages

    8

  • Pages from-to

    1348-1355

  • UT code for WoS article

    000631239200001

  • EID of the result in the Scopus database

    2-s2.0-85098551520