The attitudes of progressive neurological disease patients and their family members to end of life care: a cross-sectional study
The result's identifiers
Result code in IS VaVaI
<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F00843989%3A_____%2F22%3AE0109569" target="_blank" >RIV/00843989:_____/22:E0109569 - isvavai.cz</a>
Alternative codes found
RIV/61988987:17110/20:A22025Z6
Result on the web
<a href="https://journals.sagepub.com/doi/10.1177/0030222820936922" target="_blank" >https://journals.sagepub.com/doi/10.1177/0030222820936922</a>
DOI - Digital Object Identifier
<a href="http://dx.doi.org/10.1177/0030222820936922" target="_blank" >10.1177/0030222820936922</a>
Alternative languages
Result language
angličtina
Original language name
The attitudes of progressive neurological disease patients and their family members to end of life care: a cross-sectional study
Original language description
The objective was to identify the attitudes of progressive neurological disease (PND) patients and their family members regarding end-of-life care, and their worries about dying. The sample included 327 participants. The Attitudes of Patients with PND to End-of-Life Care questionnaire was used to collect the data. Statistically significant differences in the assessment of attitudes towards end-of-life care between patients and family members were identified (p < 0.001). Family members more frequently favored patients being kept alive at any cost; patients more commonly wished to have their end of life under control. Respondents most frequently deferred to doctors when it came to decisions on treatment to keep patients alive. However, both patients and family members wanted patients to be able to decide on their treatment by leaving a written record of their previously stated wishes. The demands of patients and their families regarding end-of-life care should be documented in individual care plans.
Czech name
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Czech description
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Classification
Type
J<sub>imp</sub> - Article in a specialist periodical, which is included in the Web of Science database
CEP classification
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OECD FORD branch
30210 - Clinical neurology
Result continuities
Project
<a href="/en/project/NV17-29447A" target="_blank" >NV17-29447A: A NEUROPALLIATIVE REHABILITATION APPROACH TO PRESERVE THE QUALITY OF LIFE IN PATIENTS WITH AN ADVANCED STAGE OF SELECTED NEUROLOGICAL DISEASES</a><br>
Continuities
P - Projekt vyzkumu a vyvoje financovany z verejnych zdroju (s odkazem do CEP)
Others
Publication year
2022
Confidentiality
S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů
Data specific for result type
Name of the periodical
OMEGA - Journal of death and dying
ISSN
0030-2228
e-ISSN
1541-3764
Volume of the periodical
85
Issue of the periodical within the volume
1
Country of publishing house
US - UNITED STATES
Number of pages
19
Pages from-to
4-22
UT code for WoS article
000542824900001
EID of the result in the Scopus database
2-s2.0-85086775111