The Unmet Needs of Patients With Progressive Neurological Diseases in the Czech Republic: A Qualitative Study
The result's identifiers
Result code in IS VaVaI
<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F61988987%3A17110%2F19%3AA2001YY8" target="_blank" >RIV/61988987:17110/19:A2001YY8 - isvavai.cz</a>
Result on the web
<a href="https://journals.sagepub.com/doi/10.1177/0825859718800489" target="_blank" >https://journals.sagepub.com/doi/10.1177/0825859718800489</a>
DOI - Digital Object Identifier
<a href="http://dx.doi.org/10.1177/0825859718800489" target="_blank" >10.1177/0825859718800489</a>
Alternative languages
Result language
angličtina
Original language name
The Unmet Needs of Patients With Progressive Neurological Diseases in the Czech Republic: A Qualitative Study
Original language description
Aim: The aim of our research was to explore the unfulfilled needs of patients with a progressive neurological disease in advanced stage of the illness within the current system of health and social care in the Czech Republic. Design and Setting: Qualitative research (grounded theory) was used to conceptualize the patterns of unmet palliative care needs in Czech Republic. Methods: The data collection method comprised individual, in-depth interviews (n = 19) and focus groups (n = 4) where a total of 52 respondents participated (patients with progressive neurological diseases [PNDs], family members, and professionals). Results: Two main categories of unfulfilled needs were determined (life with the disease, professional help), and they were described in the context of the 3 crucial themes identified in the study-the symptoms of the advanced stage of the disease resulted in substantial reduction of physical self-sufficiency, loss of autonomy, and social isolation; the level of dependence on the support and help of others increased; the patients also highlighted several problems related to health-care services. Conclusion: The unmet needs should be taken into consideration when creating the concept of the neuropalliative and rehabilitation care, including the mental health support plan, because of the emotional, behavioral, and cognitive disorders that frequently occur in the lives of a substantial amount of patients with PND.
Czech name
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Czech description
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Classification
Type
J<sub>imp</sub> - Article in a specialist periodical, which is included in the Web of Science database
CEP classification
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OECD FORD branch
30305 - Occupational health
Result continuities
Project
<a href="/en/project/NV17-29447A" target="_blank" >NV17-29447A: A NEUROPALLIATIVE REHABILITATION APPROACH TO PRESERVE THE QUALITY OF LIFE IN PATIENTS WITH AN ADVANCED STAGE OF SELECTED NEUROLOGICAL DISEASES</a><br>
Continuities
P - Projekt vyzkumu a vyvoje financovany z verejnych zdroju (s odkazem do CEP)
Others
Publication year
2019
Confidentiality
S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů
Data specific for result type
Name of the periodical
JOURNAL OF PALLIATIVE CARE
ISSN
0825-8597
e-ISSN
2369-5293
Volume of the periodical
34
Issue of the periodical within the volume
1
Country of publishing house
US - UNITED STATES
Number of pages
9
Pages from-to
38-46
UT code for WoS article
000454135400009
EID of the result in the Scopus database
2-s2.0-85058426635