Fear of dying related to Parkinson´s disease: patients and family members

Result code in IS VaVaI

<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F61988987%3A17110%2F19%3AA20023IR" target="_blank" >RIV/61988987:17110/19:A20023IR - isvavai.cz</a>

Result on the web

<a href="https://www.jns-journal.com/action/showPdf?pii=S0022-510X%2819%2931601-6" target="_blank" >https://www.jns-journal.com/action/showPdf?pii=S0022-510X%2819%2931601-6</a>

DOI - Digital Object Identifier

<a href="http://dx.doi.org/10.1016/j.jns.2019.10.1127" target="_blank" >10.1016/j.jns.2019.10.1127</a>

Result language

angličtina

Original language name

Fear of dying related to Parkinson´s disease: patients and family members

Original language description

Over the past 10 years, there has been an increasing interest in the provision of quality end-of-life care for patients with Parkinson's disease (PD) [1, 2]. The aim of the research was to identify fear of dying in Parkinson’s patients (PD) and their family members and compare reasons of fear according to sociodemographic characteristics and patients’ health status. The fear of dying was assessed with APND-EoLC questionnaire (Attitudes of Patients with Progressive Neurological Disease to End-of- Life Care, part Fear of Dying – 9 items). The sample consisted of 134 participants, patients with PD (mean age: 71.4 year) and their family members (mean age: 60.3) from the Czech Republic. Patients reported to have a greater fear (p < 0.0001) in the domain “Dependence/Loss of control” (mean = 79.1, 95%CI: 74.6–83.6) than in the domain “One’s own suffering” (mean = 69.3, 95%CI: 64.6–74.0). Patients worried most about “Being a burden to others” (mean = 8.2, SD = 2.2), this was most often true for widowers (p = 0.024) and patients without a care allowance (p = 0.006). On the other hand, family members (p = 0.002) were more afraid of suffering of their significant other during dying (mean = 79.3, 95%CI: 74.9–83.7) than of “Dependence/Loss of control” (mean = 71.9, 95%CI: 66.3–77.4). Family members feared most “fear of severe pain during dying” (mean = 9.1, SD = 1.6). Family members of patients without a care allowance more often feared of dependence and loss of control (p = 0.031). Fear of suffering during dying was indicated more often by patients’ children rather than their life partners (p = 0.021). Other differences were not found as significant. In the light of the emotive impact of PD in both patients and caregivers, one recommendation is for clinicians to elicit more information about feelings, such as fear of dying.

Czech name

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Czech description

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Type

D - Article in proceedings

CEP classification

—

OECD FORD branch

50100 - Psychology and cognitive sciences

Project

—

Continuities

V - Vyzkumna aktivita podporovana z jinych verejnych zdroju

Publication year

2019

Confidentiality

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Article name in the collection

Neurological Sciences

ISBN

—

ISSN

0022-510X

e-ISSN

1878-5883

Number of pages

1

Pages from-to

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Publisher name

—

Place of publication

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Event location

Dubaj

Event date

Oct 27, 2019

Type of event by nationality

WRD - Celosvětová akce

UT code for WoS article

000516770700340