Language validation of a measurement instrument to assess the needs of parents and children in palliative care - a pilot study

Result code in IS VaVaI

<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F61988987%3A17110%2F24%3AA2503AGZ" target="_blank" >RIV/61988987:17110/24:A2503AGZ - isvavai.cz</a>

Result on the web

<a href="http://kont.zsf.jcu.cz/doi/10.32725/kont.2024.048.html" target="_blank" >http://kont.zsf.jcu.cz/doi/10.32725/kont.2024.048.html</a>

DOI - Digital Object Identifier

<a href="http://dx.doi.org/10.32725/kont.2024.048" target="_blank" >10.32725/kont.2024.048</a>

Result language

angličtina

Original language name

Language validation of a measurement instrument to assess the needs of parents and children in palliative care - a pilot study

Original language description

Introduction: Pediatric palliative care is a specialized form of care provided to children with terminal illnesses or life-threatening conditions. Its aim is not only to control symptoms, but also to improve the overall quality of life of the child and its family. It includes comprehensive support and care that respects the individual needs of the child and its family, including physical, emotional, social, and spiritual aspects. Objective: To translate and implement the language validation of the Pediatric Palliative Care – Parent & Child Needs Survey (PCNeeds) tool and to determine the level of needs of families caring for a child with a life-limiting or life-threatening illness. Methods: To determine the needs of parents of children in palliative care, a quantitative method of a questionnaire survey was used in which 20 parents participated. Data analysis was carried out using descriptive statistics. Results: The highest level of needs of families was in the area of coping with the child’s symptoms, including pain. Parents felt emotional strain, social isolation, and overall pressure on the family, including financial burden. However, they also expressed a high degree of satisfaction in many areas, such as communication with health professionals, clarity of information, and the relationship with their child. Conclusion: The study demonstrated the high internal consistency of the Czech version of the PCNeeds measurement instrument. It will be further tested for psychometric properties in the next stage of the research.

Czech name

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Czech description

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Type

J_imp - Article in a specialist periodical, which is included in the Web of Science database

CEP classification

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OECD FORD branch

30307 - Nursing

Project

—

Continuities

S - Specificky vyzkum na vysokych skolach

Publication year

2024

Confidentiality

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Name of the periodical

KONTAKT-JOURNAL OF NURSING AND SOCIAL SCIENCES RELATED TO HEALTH AND ILLNESS

ISSN

1212-4117

e-ISSN

1804-7122

Volume of the periodical

—

Issue of the periodical within the volume

4

Country of publishing house

CZ - CZECH REPUBLIC

Number of pages

7

Pages from-to

347-353

UT code for WoS article

001382576000006

EID of the result in the Scopus database

2-s2.0-85216229233