End-of-life and dying in persons with intellectual disabilities: implications for counseling, education and support
The result's identifiers
Result code in IS VaVaI
<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F61989592%3A15410%2F19%3A73594882" target="_blank" >RIV/61989592:15410/19:73594882 - isvavai.cz</a>
Result on the web
<a href="https://docs.wixstatic.com/ugd/32dbef_7f0a2551a30f4212ad55ec2380b60f0e.pdf?index=true" target="_blank" >https://docs.wixstatic.com/ugd/32dbef_7f0a2551a30f4212ad55ec2380b60f0e.pdf?index=true</a>
DOI - Digital Object Identifier
<a href="http://dx.doi.org/10.32008/NORDSCI2019/B1/V2" target="_blank" >10.32008/NORDSCI2019/B1/V2</a>
Alternative languages
Result language
angličtina
Original language name
End-of-life and dying in persons with intellectual disabilities: implications for counseling, education and support
Original language description
People with intellectual disabilities (ID) generally have a shorter lifespan, but the duration of quality life is becoming more and more extended. That is why supportive, holistically-oriented palliative care is also gaining in importance in the period when a client with ID is dying, or is in the end-of-life stage of life. Although recent years have seen a steady increase in published surveillance and theoretical studies, empirical data about the needs of palliative care for people with ID are still rather rare. Most of the staff working in the health, social, and other service sectors are confronted with the difficulty of caring for, the approach to be taken to, and communication with people with ID. These people need adequate support in the topics of death, dying, accompanying and mourning. People engaged in the helping professions should not deliberately avoid these topics, but, on the contrary, become initiators of open, clear, and objective communication heading towards the greatest possible extent of help and support to people with ID. At the same time, it is a huge demand for education and a great challenge for the pre-graduate and professional training of helping professions.
Czech name
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Czech description
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Classification
Type
D - Article in proceedings
CEP classification
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OECD FORD branch
50302 - Education, special (to gifted persons, those with learning disabilities)
Result continuities
Project
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Continuities
I - Institucionalni podpora na dlouhodoby koncepcni rozvoj vyzkumne organizace
Others
Publication year
2019
Confidentiality
S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů
Data specific for result type
Article name in the collection
NORDSCI International Conference on Social Sciences: Conference Proceedings
ISBN
978-619-7495-05-8
ISSN
2603-4107
e-ISSN
2603-4107
Number of pages
10
Pages from-to
269-278
Publisher name
Saima Consult LTD
Place of publication
Sofia
Event location
Athens
Event date
Aug 19, 2019
Type of event by nationality
WRD - Celosvětová akce
UT code for WoS article
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