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End-of-life and dying in persons with intellectual disabilities: implications for counseling, education and support

The result's identifiers

  • Result code in IS VaVaI

    <a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F61989592%3A15410%2F19%3A73594882" target="_blank" >RIV/61989592:15410/19:73594882 - isvavai.cz</a>

  • Result on the web

    <a href="https://docs.wixstatic.com/ugd/32dbef_7f0a2551a30f4212ad55ec2380b60f0e.pdf?index=true" target="_blank" >https://docs.wixstatic.com/ugd/32dbef_7f0a2551a30f4212ad55ec2380b60f0e.pdf?index=true</a>

  • DOI - Digital Object Identifier

    <a href="http://dx.doi.org/10.32008/NORDSCI2019/B1/V2" target="_blank" >10.32008/NORDSCI2019/B1/V2</a>

Alternative languages

  • Result language

    angličtina

  • Original language name

    End-of-life and dying in persons with intellectual disabilities: implications for counseling, education and support

  • Original language description

    People with intellectual disabilities (ID) generally have a shorter lifespan, but the duration of quality life is becoming more and more extended. That is why supportive, holistically-oriented palliative care is also gaining in importance in the period when a client with ID is dying, or is in the end-of-life stage of life. Although recent years have seen a steady increase in published surveillance and theoretical studies, empirical data about the needs of palliative care for people with ID are still rather rare. Most of the staff working in the health, social, and other service sectors are confronted with the difficulty of caring for, the approach to be taken to, and communication with people with ID. These people need adequate support in the topics of death, dying, accompanying and mourning. People engaged in the helping professions should not deliberately avoid these topics, but, on the contrary, become initiators of open, clear, and objective communication heading towards the greatest possible extent of help and support to people with ID. At the same time, it is a huge demand for education and a great challenge for the pre-graduate and professional training of helping professions.

  • Czech name

  • Czech description

Classification

  • Type

    D - Article in proceedings

  • CEP classification

  • OECD FORD branch

    50302 - Education, special (to gifted persons, those with learning disabilities)

Result continuities

  • Project

  • Continuities

    I - Institucionalni podpora na dlouhodoby koncepcni rozvoj vyzkumne organizace

Others

  • Publication year

    2019

  • Confidentiality

    S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Data specific for result type

  • Article name in the collection

    NORDSCI International Conference on Social Sciences: Conference Proceedings

  • ISBN

    978-619-7495-05-8

  • ISSN

    2603-4107

  • e-ISSN

    2603-4107

  • Number of pages

    10

  • Pages from-to

    269-278

  • Publisher name

    Saima Consult LTD

  • Place of publication

    Sofia

  • Event location

    Athens

  • Event date

    Aug 19, 2019

  • Type of event by nationality

    WRD - Celosvětová akce

  • UT code for WoS article