Specifics of Education of Children with Spinal Muscular Atrophy

Result code in IS VaVaI

<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F61989592%3A15410%2F23%3A73617473" target="_blank" >RIV/61989592:15410/23:73617473 - isvavai.cz</a>

Result on the web

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DOI - Digital Object Identifier

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Result language

angličtina

Original language name

Specifics of Education of Children with Spinal Muscular Atrophy

Original language description

The school represents a natural social environment in which children make use of their potential and establish relationships with peers. Therefore, it plays a very important role in the life of children and affects the quality of their life. The education of a child with spinal muscular atrophy is always based on the level of the child’s preserved abilities. The primary task in education is to provide technical compensation for the loss of movement and use appropriate interventions to ensure the social aspects of inclusion. In some children with a more severe course of the disease, it is necessary to provide assistance that includes healthcare aspects. Although a child with SMA faces many psychosocial challenges, other actors in school can influence how the child addresses them. Therefore, the task of all actors in school is to try to create a safe environment that respects and supports the uniqueness of every pupil including those with spinal muscular atrophy and provides a positive climate for the child’s adaptation and a successful educational process. This theoretical paper presents the specifics of education of children and adolescents with spinal muscular atrophy for whom regular school attendance is not practicable. The paper presents the main topics related to the education of children with spinal muscular atrophy including their special educational needs as well as the practical knowledge and social-emotional aspects in the education of this target group.

Czech name

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Czech description

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Type

D - Article in proceedings

CEP classification

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OECD FORD branch

50302 - Education, special (to gifted persons, those with learning disabilities)

Project

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Continuities

S - Specificky vyzkum na vysokych skolach

Publication year

2023

Confidentiality

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Article name in the collection

Proceedings of VIAC 2023

ISBN

978-80-88203-31-5

ISSN

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e-ISSN

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Number of pages

6

Pages from-to

8-13

Publisher name

Czech Institute of Academic Education z.s.

Place of publication

Praha

Event location

Virtual

Event date

Feb 17, 2023

Type of event by nationality

WRD - Celosvětová akce

UT code for WoS article

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