Comprehensive care on paper only? The challenge for physiotherapy provision in day to day haemophilia practice

Result code in IS VaVaI

<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F65269705%3A_____%2F21%3A00075861" target="_blank" >RIV/65269705:_____/21:00075861 - isvavai.cz</a>

Result on the web

<a href="https://onlinelibrary.wiley.com/doi/10.1111/hae.14150" target="_blank" >https://onlinelibrary.wiley.com/doi/10.1111/hae.14150</a>

DOI - Digital Object Identifier

<a href="http://dx.doi.org/10.1111/hae.14150" target="_blank" >10.1111/hae.14150</a>

Result language

angličtina

Original language name

Comprehensive care on paper only? The challenge for physiotherapy provision in day to day haemophilia practice

Original language description

Comprehensive care for people with haemophilia (PWH) is endorsed by the World Federation of Haemophilia (WFH), and it is now the preferred model of care provision for people with inherited bleeding disorders. This overarching approach to care provision is both a rapid acute service as well as a preventive medicine approach and has proven successful in terms of outcomes related to morbidity and mortality, quality of life and general health, even with the associated higher costs for the expertise required.1 Centres should have specialist haematologists/paediatricians, specialist nurse and physiotherapists, 24-hour laboratory and clinical support, as well as access to specialist orthopaedics, dental and HIV/hepatology services. The WFH describes physiotherapy for PWH as being a lifelong requirement, whereby assessment, education and treatment are provided for acute bleeds and chronic musculoskeletal (MSK) complications with a range of physical medicine techniques. This description serves only to describe physiotherapy as an intervention. The World Confederation of Physical Therapy describes the &apos;profession&apos; of physiotherapy as the interaction between the physiotherapist (individual), patients/clients, other health professionals, families, care givers and communities in a process where movement potential is assessed and goals are agreed upon using knowledge and skills unique to physiotherapists.2 It would appear that the full set of competencies of the physiotherapist are not being recognized or utilized in haemophilia treatment centres.

Czech name

—

Czech description

—

Type

J_imp - Article in a specialist periodical, which is included in the Web of Science database

CEP classification

—

OECD FORD branch

30205 - Hematology

Project

—

Continuities

I - Institucionalni podpora na dlouhodoby koncepcni rozvoj vyzkumne organizace

Publication year

2021

Confidentiality

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Name of the periodical

Haemophilia

ISSN

1351-8216

e-ISSN

—

Volume of the periodical

27

Issue of the periodical within the volume

2

Country of publishing house

US - UNITED STATES

Number of pages

3

Pages from-to

"E284"-"E286"

UT code for WoS article

000574764200001

EID of the result in the Scopus database

2-s2.0-85092114974