Telemedicine in Neuromuscular Diseases During Covid-19 Pandemic: ERN-NMD European Survey

Result code in IS VaVaI

<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F65269705%3A_____%2F23%3A00077982" target="_blank" >RIV/65269705:_____/23:00077982 - isvavai.cz</a>

Result on the web

<a href="https://content.iospress.com/download/journal-of-neuromuscular-diseases/jnd221525?id=journal-of-neuromuscular-diseases%2Fjnd221525" target="_blank" >https://content.iospress.com/download/journal-of-neuromuscular-diseases/jnd221525?id=journal-of-neuromuscular-diseases%2Fjnd221525</a>

DOI - Digital Object Identifier

<a href="http://dx.doi.org/10.3233/JND-221525" target="_blank" >10.3233/JND-221525</a>

Result language

angličtina

Original language name

Telemedicine in Neuromuscular Diseases During Covid-19 Pandemic: ERN-NMD European Survey

Original language description

Background: Telemedicine (TM) contributes to bridge the gap between healthcare facilities and patients&apos; homes with neuromuscular disease (NMD) because of mobility issues. However, its deployment is limited due to difficulties evaluating subtle neurological signs such as mild weakness or sensory deficits. The COVID-19 pandemic has disrupted healthcare delivery worldwide, necessitating rapid measures implementation by health care providers (HCPs) to protect patients from acquiring SARS-CoV-2 while maintaining the best care and treatment.Objectives: Given the challenges faced by remote healthcare assistance of NMD patients, we aim to evaluate the use of TM in NMD during the COVID-19 pandemic. Methods: Based on the Model for Assessment-of-Telemedicine-Applications (MAST), we conducted a survey amongst clinicians of the ERN EURO NMD (European-Reference-Network-for-Rare-Neuromuscular-Diseases). Results: Based on 42 responses over 76 expected ones, our results show that the COVID-19 pandemic significantly increased the number of HCPs usingTM(from 60% to 100%). TheTMtypes most used during theCOVID-19 period are teleconsultation and consultation by phone, particularly in the context of symptoms worsening in NMD patients with COVID-19 infection. Most European HCPs were satisfied when usingTMbut as a complementary option to physical consultations. Many responses addressed the issue of technical aspects needing improvement, particularly for elderly patients who need caregivers&apos; assistance for accessing the TM platform. Conclusions: TM has been essential during COVID-19, but its use still presents some limitations for NMD patients with cognitive deficits or for first-time diagnosis. Thus, TMshould be used as complement to, rather than substitute, for face-to-face consultations.

Czech name

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Czech description

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Type

J_imp - Article in a specialist periodical, which is included in the Web of Science database

CEP classification

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OECD FORD branch

30210 - Clinical neurology

Project

—

Continuities

I - Institucionalni podpora na dlouhodoby koncepcni rozvoj vyzkumne organizace

Publication year

2023

Confidentiality

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Name of the periodical

Journal of Neuromuscular Diseases

ISSN

2214-3599

e-ISSN

2214-3602

Volume of the periodical

10

Issue of the periodical within the volume

2

Country of publishing house

NL - THE KINGDOM OF THE NETHERLANDS

Number of pages

12

Pages from-to

173-184

UT code for WoS article

000948014800002

EID of the result in the Scopus database

2-s2.0-85150079762