Teenagers and Adolescents with Hemophilia-Need for a Specific Approach

Result code in IS VaVaI

<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F65269705%3A_____%2F24%3A00080346" target="_blank" >RIV/65269705:_____/24:00080346 - isvavai.cz</a>

Alternative codes found

RIV/00216224:14110/24:00138894

Result on the web

<a href="https://www.mdpi.com/2077-0383/13/17/5121" target="_blank" >https://www.mdpi.com/2077-0383/13/17/5121</a>

DOI - Digital Object Identifier

<a href="http://dx.doi.org/10.3390/jcm13175121" target="_blank" >10.3390/jcm13175121</a>

Result language

angličtina

Original language name

Teenagers and Adolescents with Hemophilia-Need for a Specific Approach

Original language description

Adolescents with hemophilia are a patient population with special requirements, having to manage their condition alongside the typical challenges of adolescence. Given the psychosocial impact of hemophilia and a desire to fit in with non-hemophilic peers, they may perceive treatment as more of a burden than a benefit. This can result in low adherence and a high risk of hemophilia-related complications. Hemophilia management has changed over time. To best inform shared decision-making with adolescent patients and their families, healthcare professionals must consider all the currently available evidence, highlighting treatment benefits as appropriate. They should also appreciate the requirements of all adolescents affected by hemophilia, including individuals with non-severe disease and girls/women. We discuss specific issues relating to the management of adolescents with hemophilia: prevention and management of bleeds, treatment adherence, joint health and physical activity, and other health-related issues. A multidisciplinary approach is advocated, and the potential role of digital technology in helping to equip patients with self-management skills to fully engage with treatment is considered. Currently, available hemophilia management generally enables adolescents with hemophilia to lead normal lives, participating in physical activities while maintaining good joint health. However, more work is required to help address both actual and perceived limitations.

Czech name

—

Czech description

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Type

J_imp - Article in a specialist periodical, which is included in the Web of Science database

CEP classification

—

OECD FORD branch

30218 - General and internal medicine

Project

—

Continuities

I - Institucionalni podpora na dlouhodoby koncepcni rozvoj vyzkumne organizace

Publication year

2024

Confidentiality

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Name of the periodical

Journal of Clinical Medicine

ISSN

2077-0383

e-ISSN

2077-0383

Volume of the periodical

13

Issue of the periodical within the volume

17

Country of publishing house

CH - SWITZERLAND

Number of pages

12

Pages from-to

5121

UT code for WoS article

001311066200001

EID of the result in the Scopus database

2-s2.0-85203866353