Factors Influencing Parental Awareness about Newborn Screening
The result's identifiers
Result code in IS VaVaI
<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F00064165%3A_____%2F19%3A10400788" target="_blank" >RIV/00064165:_____/19:10400788 - isvavai.cz</a>
Alternative codes found
RIV/00216208:11110/19:10400788
Result on the web
<a href="https://verso.is.cuni.cz/pub/verso.fpl?fname=obd_publikace_handle&handle=vDDSx6o7n4" target="_blank" >https://verso.is.cuni.cz/pub/verso.fpl?fname=obd_publikace_handle&handle=vDDSx6o7n4</a>
DOI - Digital Object Identifier
<a href="http://dx.doi.org/10.3390/ijns5030035" target="_blank" >10.3390/ijns5030035</a>
Alternative languages
Result language
angličtina
Original language name
Factors Influencing Parental Awareness about Newborn Screening
Original language description
Appropriate and timely education about newborn screening (NBS) helps to foster benefits such as prompt follow up, to promote parents' autonomy via informed consent and minimize the harms such as reducing the impact of NBS false-positive results. The aim of this study was to ascertain how mothers are informed about NBS in the Czech Republic and to identify the variables associated with awareness about NBS. The questionnaires evaluating awareness and its determinants were mailed to a random sample of 3000 mothers 3 months post-delivery. The overall response rate was 42%. We analysed 1100 questionnaires and observed that better awareness about NBS was significantly associated with age, parity, number of information sources, child health status, size of maternity hospital and an obstetrician as the source of prenatally obtained information. Although the majority of mothers (77%) in our study recalled being informed by a physician or nurse in the neonatal ward, results have revealed that over 40% of participants did not have sufficient awareness about the principal aspects of NBS. Several measures including seminars for healthcare providers and the development and distribution of new educational materials were adopted to improve parental education about NBS in the Czech Republic.
Czech name
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Czech description
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Classification
Type
J<sub>imp</sub> - Article in a specialist periodical, which is included in the Web of Science database
CEP classification
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OECD FORD branch
30209 - Paediatrics
Result continuities
Project
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Continuities
I - Institucionalni podpora na dlouhodoby koncepcni rozvoj vyzkumne organizace
Others
Publication year
2019
Confidentiality
S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů
Data specific for result type
Name of the periodical
International Journal of Neonatal Screening
ISSN
2409-515X
e-ISSN
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Volume of the periodical
5
Issue of the periodical within the volume
3
Country of publishing house
CH - SWITZERLAND
Number of pages
13
Pages from-to
35
UT code for WoS article
000487948100003
EID of the result in the Scopus database
2-s2.0-85074346902