Priorities for research in perinatal palliative care: an international Delphi study
The result's identifiers
Result code in IS VaVaI
<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F00064203%3A_____%2F25%3A10499702" target="_blank" >RIV/00064203:_____/25:10499702 - isvavai.cz</a>
Alternative codes found
RIV/00216224:14110/25:00141627 RIV/00216208:11120/25:43928649
Result on the web
<a href="https://verso.is.cuni.cz/pub/verso.fpl?fname=obd_publikace_handle&handle=Smtvw_EUXb" target="_blank" >https://verso.is.cuni.cz/pub/verso.fpl?fname=obd_publikace_handle&handle=Smtvw_EUXb</a>
DOI - Digital Object Identifier
<a href="http://dx.doi.org/10.1186/s12904-025-01845-9" target="_blank" >10.1186/s12904-025-01845-9</a>
Alternative languages
Result language
angličtina
Original language name
Priorities for research in perinatal palliative care: an international Delphi study
Original language description
BACKGROUND: Perinatal palliative care (PPC) addresses the complex needs of families facing life-limiting fetal or neonatal conditions through an interdisciplinary, family-centered approach. Despite growing recognition of its importance, there is a lack of systematically defined research priorities to guide the development of evidence-based PPC practices. OBJECTIVE: To identify and establish research priorities for perinatal palliative care (PPC) using a Delphi method with international experts and parents who experienced perinatal loss. METHODS: This Delphi study involved three Delphi survey rounds with experts and bereaved parents. Participants provided and refined research priorities across rounds. In the first round, participants provided suggestions for research topics spontaneously. Topics were analyzed using principles of thematic analysis and further rated and ranked based on their importance in two additional rounds of consensual scoring. Consensus was defined as a score above the mean from at least 75% of respondents. RESULTS: A total of 125 experts and 10 parents who experienced a perinatal loss were invited to participate in the study. Response rate in the three rounds was 24, 31, and 34%. A total of 187 research priorities were initially suggested, resulting in 34 topics reaching consensus. Final rankings and priority topics were categorized into seven thematic areas: organization of care, decision-making and communication, staff support and education, ethics, symptom management, bereavement, and family experience. CONCLUSIONS: This study identified critical research areas in PPC, providing a roadmap for future research to enhance support for families and healthcare providers in PPC.
Czech name
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Czech description
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Classification
Type
J<sub>imp</sub> - Article in a specialist periodical, which is included in the Web of Science database
CEP classification
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OECD FORD branch
30300 - Health sciences
Result continuities
Project
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Continuities
I - Institucionalni podpora na dlouhodoby koncepcni rozvoj vyzkumne organizace
Others
Publication year
2025
Confidentiality
S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů
Data specific for result type
Name of the periodical
BMC Palliative Care
ISSN
1472-684X
e-ISSN
1472-684X
Volume of the periodical
24
Issue of the periodical within the volume
July
Country of publishing house
GB - UNITED KINGDOM
Number of pages
7
Pages from-to
202
UT code for WoS article
001529868800001
EID of the result in the Scopus database
2-s2.0-105010728439