Health related quality of life measure in systemic pediatric rheumatic diseases and its translation to different languages: an international collaboration
The result's identifiers
Result code in IS VaVaI
<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F00216208%3A11110%2F14%3A10293147" target="_blank" >RIV/00216208:11110/14:10293147 - isvavai.cz</a>
Alternative codes found
RIV/00216208:11130/14:10293147 RIV/00064203:_____/14:10293147 RIV/00064165:_____/14:10293147
Result on the web
<a href="http://dx.doi.org/10.1186/1546-0096-12-49" target="_blank" >http://dx.doi.org/10.1186/1546-0096-12-49</a>
DOI - Digital Object Identifier
<a href="http://dx.doi.org/10.1186/1546-0096-12-49" target="_blank" >10.1186/1546-0096-12-49</a>
Alternative languages
Result language
angličtina
Original language name
Health related quality of life measure in systemic pediatric rheumatic diseases and its translation to different languages: an international collaboration
Original language description
Background: Rheumatic diseases in children are associated with significant morbidity and poor health-related quality of life (HRQOL). There is no health-related quality of life (HRQOL) scale available specifically for children with less common rheumaticdiseases. These diseases share several features with systemic lupus erythematosus (SLE) such as their chronic episodic nature, multi-systemic involvement, and the need for immunosuppressive medications. HRQOL scale developed for pediatric SLE will likelybe applicable to children with systemic inflammatory diseases. Findings: We adapted Simple Measure of Impact of Lupus Erythematosus in Youngsters (SMILEY (c)) to Simple Measure of Impact of Illness in Youngsters (SMILY (c)-Illness) and had it reviewed by pediatric rheumatologists for its appropriateness and cultural suitability. We tested SMILY (c)-Illness in patients with inflammatory rheumatic diseases and then translated it into 28 languages. Nineteen children (79% female, n= 15) and
Czech name
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Czech description
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Classification
Type
J<sub>x</sub> - Unclassified - Peer-reviewed scientific article (Jimp, Jsc and Jost)
CEP classification
FG - Paediatrics
OECD FORD branch
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Result continuities
Project
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Continuities
I - Institucionalni podpora na dlouhodoby koncepcni rozvoj vyzkumne organizace
Others
Publication year
2014
Confidentiality
S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů
Data specific for result type
Name of the periodical
Pediatric Rheumatology
ISSN
1546-0096
e-ISSN
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Volume of the periodical
12
Issue of the periodical within the volume
neuveden
Country of publishing house
US - UNITED STATES
Number of pages
6
Pages from-to
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UT code for WoS article
000346520700001
EID of the result in the Scopus database
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