Living with Systemic Lupus Erythematosus: A Profile of Young Female Patients
The result's identifiers
Result code in IS VaVaI
<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F61989592%3A15260%2F20%3A73603483" target="_blank" >RIV/61989592:15260/20:73603483 - isvavai.cz</a>
Result on the web
<a href="https://www.mdpi.com/1660-4601/17/4/1315/htm" target="_blank" >https://www.mdpi.com/1660-4601/17/4/1315/htm</a>
DOI - Digital Object Identifier
<a href="http://dx.doi.org/10.3390/ijerph17041315" target="_blank" >10.3390/ijerph17041315</a>
Alternative languages
Result language
angličtina
Original language name
Living with Systemic Lupus Erythematosus: A Profile of Young Female Patients
Original language description
The aim is to describe a profile of systemic lupus erythematosus (SLE) patient (socio-demographic data, course of disease, health status, and health care utilization, SLE impact on their life, SLE awareness) and to explore the association of patient's perspective with clinical indicators. Adult patients diagnosed by SLE were recruited in outpatient clinics (n = 76, 88% female, data collected in 2012-2016, Slovakia). The association of patients' perspective (SLE status, health complaints during remission, SLE impact, hospitalizations) with clinical activity (European Consensus Lupus Activity Measurement Index-ECLAM) and inflammatory marker (erythrocyte sedimentation rate-ESR) was assessed by t-test for independent variables and one-way ANOVA. Almost 17.9% of patients reported relapse. During remission, they mostly suffered fatigue and pain. Nearly all patients were on chronic pharmacological treatment. Most of the patients assessed SLE impact on their life as restrictive (56.9%) or very restrictive (23.1%). The most frequent source of information was their physician, and 67.2% reported that they have sufficient information about the disease and its treatment. Only the association of SLE status and hospitalization with clinical activity (ECLAM) and inflammatory marker (ESR) were confirmed. With recent improvements in diagnostics and therapy options, the prognosis for patients with SLE has improved. Nevertheless, the impact of this disease on all areas of a patient's life is extensive.
Czech name
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Czech description
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Classification
Type
J<sub>imp</sub> - Article in a specialist periodical, which is included in the Web of Science database
CEP classification
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OECD FORD branch
30304 - Public and environmental health
Result continuities
Project
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Continuities
I - Institucionalni podpora na dlouhodoby koncepcni rozvoj vyzkumne organizace
Others
Publication year
2020
Confidentiality
S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů
Data specific for result type
Name of the periodical
International Journal of Environmental Research and Public Health
ISSN
1661-7827
e-ISSN
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Volume of the periodical
17
Issue of the periodical within the volume
4
Country of publishing house
CH - SWITZERLAND
Number of pages
11
Pages from-to
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UT code for WoS article
000522388500191
EID of the result in the Scopus database
2-s2.0-85079703416