Fostering Palliative Care Through Digital Intervention: A Platform for Adult Patients With Hematologic Malignancies

Result code in IS VaVaI

<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F00216224%3A14740%2F21%3A00134813" target="_blank" >RIV/00216224:14740/21:00134813 - isvavai.cz</a>

Result on the web

<a href="https://www.frontiersin.org/journals/digital-health/articles/10.3389/fdgth.2021.730722/full" target="_blank" >https://www.frontiersin.org/journals/digital-health/articles/10.3389/fdgth.2021.730722/full</a>

DOI - Digital Object Identifier

<a href="http://dx.doi.org/10.3389/fdgth.2021.730722" target="_blank" >10.3389/fdgth.2021.730722</a>

Result language

angličtina

Original language name

Fostering Palliative Care Through Digital Intervention: A Platform for Adult Patients With Hematologic Malignancies

Original language description

Patient-reported outcomes (PROs) are an emerging paradigm in clinical research and healthcare, aiming to capture the patient's self-assessed health status in order to gauge efficacy of treatment from their perspective. As these patient-generated health data provide insights into the effects of healthcare processes in real-life settings beyond the clinical setting, they can also be viewed as a resolution beyond what can be gleaned directly by the clinician. To this end, patients are identified as a key stakeholder of the healthcare decision making process, instead of passively following their doctor's guidance. As this joint decision-making process requires constant and high-quality communication between the patient and his/her healthcare providers, novel methodologies and tools have been proposed to promote richer and preemptive communication to facilitate earlier recognition of potential complications. To this end, as PROs can be used to quantify the patient impact (especially important for chronic conditions such as cancer), they can play a prominent role in providing patient-centric care. In this paper, we introduce the MyPal platform that aims to support adults suffering from hematologic malignancies, focusing on the technical design and highlighting the respective challenges. MyPal is a Horizon 2020 European project aiming to support palliative care for cancer patients via the electronic PROs (ePROs) paradigm, building upon modern eHealth technologies. To this end, MyPal project evaluate the proposed eHealth intervention via clinical studies and assess its potential impact on the provided palliative care. More specifically, MyPal platform provides specialized applications supporting the regular answering of well-defined and standardized questionnaires, spontaneous symptoms reporting, educational material provision, notifications etc. The presented platform has been validated by end-users and is currently in the phase of pilot testing in a clinical study to evaluate its feasibility and its potential impact on the quality of life of palliative care patients with hematologic malignancies.

Czech name

—

Czech description

—

Type

J_imp - Article in a specialist periodical, which is included in the Web of Science database

CEP classification

—

OECD FORD branch

30300 - Health sciences

Project

—

Continuities

I - Institucionalni podpora na dlouhodoby koncepcni rozvoj vyzkumne organizace

Publication year

2021

Confidentiality

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Name of the periodical

Frontiers in Digital Health

ISSN

2673-253X

e-ISSN

2673-253X

Volume of the periodical

3

Issue of the periodical within the volume

Dec

Country of publishing house

CH - SWITZERLAND

Number of pages

12

Pages from-to

1-12

UT code for WoS article

001033308800001

EID of the result in the Scopus database

2-s2.0-85131234991