Using Electronic Patient Reported Outcomes to Foster Palliative Cancer Care: the MyPal Approach
The result's identifiers
Result code in IS VaVaI
<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F65269705%3A_____%2F19%3A00072626" target="_blank" >RIV/65269705:_____/19:00072626 - isvavai.cz</a>
Result on the web
<a href="http://dx.doi.org/10.1109/BIBE.2019.00079" target="_blank" >http://dx.doi.org/10.1109/BIBE.2019.00079</a>
DOI - Digital Object Identifier
<a href="http://dx.doi.org/10.1109/BIBE.2019.00079" target="_blank" >10.1109/BIBE.2019.00079</a>
Alternative languages
Result language
angličtina
Original language name
Using Electronic Patient Reported Outcomes to Foster Palliative Cancer Care: the MyPal Approach
Original language description
Palliative care is offered along with primary treatment to improve the quality of life of the patient by relieving the symptoms and stress of a serious illness such as cancer. As per modern definitions, palliative care is appropriate at any age and at any stage of the illness, regardless of the eventual outcome. Patient-reported outcomes (PRO), i.e., health status measurements reported directly by the patients or their proxies, and especially their availability in electronic form (ePROs), are gradually gaining popularity as building blocks of innovative palliative care interventions. This paper presents MyPal, an EC-funded collaborative research project that aims to exploit advanced eHealth technologies to develop and evaluate two novel ePRO-based general palliative care interventions for cancer patients. In particular, the paper presents: (1) a short overview of MyPal; (2) the target populations, i.e., adults suffering from chronic lymphocytic leukemia (CLL) or myelodysplastic syndromes (AIDS), and children with solid or hematologic malignancies; (3) the ePRO-based interventions being designed for the target populations, (4) the eHealth platform for delivering the interventions under development, and (5) the international, multi-center clinical studies to be conducted for assessing these interventions, i.e., a randomized controlled trial (RCT) and an observational study for adults and children, respectively.
Czech name
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Czech description
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Classification
Type
D - Article in proceedings
CEP classification
—
OECD FORD branch
20602 - Medical laboratory technology (including laboratory samples analysis; diagnostic technologies) (Biomaterials to be 2.9 [physical characteristics of living material as related to medical implants, devices, sensors])
Result continuities
Project
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Continuities
R - Projekt Ramcoveho programu EK
Others
Publication year
2019
Confidentiality
S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů
Data specific for result type
Article name in the collection
2019 IEEE 19TH INTERNATIONAL CONFERENCE ON BIOINFORMATICS AND BIOENGINEERING (BIBE)
ISBN
978-1-72814-617-1
ISSN
2471-7819
e-ISSN
—
Number of pages
5
Pages from-to
405-409
Publisher name
IEEE
Place of publication
NEW YORK
Event location
Athens
Event date
Oct 28, 2019
Type of event by nationality
WRD - Celosvětová akce
UT code for WoS article
000524679600070