Main topics related to the disease, death, and dying in communication between parents and their adolescent children with incurable cancer

Result code in IS VaVaI
<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F47122099%3A_____%2F21%3AN0000014" target="_blank" >RIV/47122099:_____/21:N0000014 - isvavai.cz</a>
Result on the web
<a href="https://doi.org/10.4149/BLL_2021_091" target="_blank" >https://doi.org/10.4149/BLL_2021_091</a>
DOI - Digital Object Identifier
<a href="http://dx.doi.org/10.4149/BLL_2021_091" target="_blank" >10.4149/BLL_2021_091</a>

Result language
angličtina
Original language name
Main topics related to the disease, death, and dying in communication between parents and their adolescent children with incurable cancer
Original language description
OBJECTIVES: The article focuses on main topics related to disease, death, and dying in communication between parents and their adolescent children with this diagnosis. METHODS: We conducted qualitative research comprising 13 interviews with parents who lost their adolescent child to cancer. We used a semi-structured interview and interpretative phenomenological analysis. RESULTS: Results introduced 6 basic topics: mutual protection, openness in the communication about cancer and death, making treatment decisions together, talks at the time of passing, hope, and spiritual experience. CONCLUSION: Adolescents appreciate age-appropriate, open communication about their disease. Talking about the disease and its prognosis appears to be the way from mutual protection to open truthfulness. Openness also includes the participation of adolescents in further treatment. For some parents, it makes sense to constantly protect the child from the fact of death. Caregivers should support discussions about death between parents and their terminally ill adolescent children and accept individual decisions to talk about death (Tab. 1, Ref. 25).
Czech name
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Czech description
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Type
J<sub>imp</sub> - Article in a specialist periodical, which is included in the Web of Science database
CEP classification
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OECD FORD branch
50102 - Psychology, special (including therapy for learning, speech, hearing, visual and other physical and mental disabilities);

Publication year
2021
Confidentiality
S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

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