Emotional and Communicational Issues in Huntington´s Disease

Result code in IS VaVaI
<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F47813059%3A19510%2F19%3AA0000168" target="_blank" >RIV/47813059:19510/19:A0000168 - isvavai.cz</a>
Result on the web
<a href="https://novapublishers.com/shop/living-with-huntingtons-disease-challenges-perspectives-and-quality-of-life/" target="_blank" >https://novapublishers.com/shop/living-with-huntingtons-disease-challenges-perspectives-and-quality-of-life/</a>
DOI - Digital Object Identifier
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Result language
angličtina
Original language name
Emotional and Communicational Issues in Huntington´s Disease
Original language description
Huntington´s disease is a devastating neurological disorder impacting all aspects of individual functioning, including cognition, mood, self-care, social interaction and the capacity for work. Similarly to other patients with neurodegenerative diseases, Huntington sufferers face innumerable problems in everyday life, both within their bodies and psyches, and in the natural and social environments. The following chapter centers on emotional and communicational issues in Huntington´s disease and their interrelations, covering a range of topics from depressive symptomatology, anxiety, helplessness or anger, to verbal and non-verbal communication and assistive technology. As the communication processes get increasingly disrupted during disease progression, knowing what the patient feels and needs represents a major challenge for both professional and lay caregivers. Simultaneously, the emotional stratum of a Huntington patient´s personality is subject to various independent detrimental effects unrelated to communication. An overview of current research combined with personal stories is provided in the present chapter along with discussion of emotional suffering of all persons involved.
Czech name
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Czech description
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Project
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Continuities
I - Institucionalni podpora na dlouhodoby koncepcni rozvoj vyzkumne organizace

Publication year
2019
Confidentiality
S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Book/collection name
Living with Huntington’s Disease: Challenges, Perspectives and Quality of Life
ISBN
9781536167290
Number of pages of the result
22
Pages from-to
91-112
Number of pages of the book
160
Publisher name
Nova Science Publishers, Inc.
Place of publication
Hauppauge, New York
UT code for WoS chapter
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