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Experience of Families with Children with Severe Multiple Disabilities: Transformations and Positive Aspects

The result's identifiers

  • Result code in IS VaVaI

    <a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F61989592%3A15410%2F16%3A73579988" target="_blank" >RIV/61989592:15410/16:73579988 - isvavai.cz</a>

  • Result on the web

  • DOI - Digital Object Identifier

Alternative languages

  • Result language

    angličtina

  • Original language name

    Experience of Families with Children with Severe Multiple Disabilities: Transformations and Positive Aspects

  • Original language description

    The issues of transformations, positive experience and achieving greater personal maturity are important for current research in families of disabled children. This article focuses on the issue of transformations in individuals with severe multiple disability (SMD). Authors use data from qualitative research of lived experience of families of children with SMD that included 11 participants. A combination of semi-structured interviews and case studies of children with SM was used to collect data. The data was further analysed using thematic analysis. The respective transformations were directed at the individual family members, sometimes families as a whole and at the perception of the child's personality. The results are discussed also in light of the need to develop theories in the field of education of these persons.

  • Czech name

  • Czech description

Classification

  • Type

    C - Chapter in a specialist book

  • CEP classification

    AM - Pedagogy and education

  • OECD FORD branch

Result continuities

  • Project

  • Continuities

    I - Institucionalni podpora na dlouhodoby koncepcni rozvoj vyzkumne organizace

Others

  • Publication year

    2016

  • Confidentiality

    S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Data specific for result type

  • Book/collection name

    Family versus post-modernity challenges.

  • ISBN

    978-83-65198-19-8

  • Number of pages of the result

    12

  • Pages from-to

    305-316

  • Number of pages of the book

    335

  • Publisher name

    Instytut Papieża Jana Pawła IIInstytut Papieża Jana Pawła II

  • Place of publication

    Warszawa

  • UT code for WoS chapter