End-of-life and dying of people with disabilities – conceptualization, topics, specifics

Result code in IS VaVaI

<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F61989592%3A15410%2F18%3A73589347" target="_blank" >RIV/61989592:15410/18:73589347 - isvavai.cz</a>

Result on the web

<a href="http://dx.doi.org/10.5593/sgemsocial2018/3.2/S11.016" target="_blank" >http://dx.doi.org/10.5593/sgemsocial2018/3.2/S11.016</a>

DOI - Digital Object Identifier

<a href="http://dx.doi.org/10.5593/sgemsocial2018/3.2/S11.016" target="_blank" >10.5593/sgemsocial2018/3.2/S11.016</a>

Result language

angličtina

Original language name

End-of-life and dying of people with disabilities – conceptualization, topics, specifics

Original language description

Accompanying people with disabilities (PwD) throughout the end-of-life and dying is an important topic in many scientific and study fields. On the basis of a literary research it can be stated that this topic is being relatively neglected in published studies covering rather recurrent themes. PwD have specific needs, require specific access and means of communication, etc. The found published studies have focused on the end-of-life period predominantly in people with mental retardation and cognitive disabilities from childhood to old age. End-of-life accompanied by a number of symptoms calls for a specialized approach as well as high-quality care provided by the staff (and caregivers). Therefore, defining adequately the end-of-life specifics of PwD is necessary. The aim of the paper is to describe the end-of-life and dying of PwD, to define the topics in this area and to describe the needs of this highly specific target group of people (clients) living either in a home or an institutional environment. Since qualitative studies provide valuable research findings, a review of already published meta-syntheses of end-of-life in dying PwD will also be a part of the paper. The paper of a review character used an interpretative content analysis method, studying of the scientific knowledge (available in databases) and a comparison process with an emphasis on partial preparation phases of a review study. The paper could be used as the fulfillment the gap in the research area for the above-mentioned topic of research and application activities.

Czech name

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Czech description

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Type

D - Article in proceedings

CEP classification

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OECD FORD branch

50302 - Education, special (to gifted persons, those with learning disabilities)

Project

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Continuities

I - Institucionalni podpora na dlouhodoby koncepcni rozvoj vyzkumne organizace

Publication year

2018

Confidentiality

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Article name in the collection

5th International Multidisciplinary Scientific Conference on Social Sciences and Arts SGEM 2018

ISBN

978-619-7408-54-6

ISSN

2367-5659

e-ISSN

2367-5659

Number of pages

6

Pages from-to

115-120

Publisher name

STEF92 Technology Ltd.

Place of publication

Sofia

Event location

Albena

Event date

Aug 26, 2018

Type of event by nationality

WRD - Celosvětová akce

UT code for WoS article

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