Family Experiences with the Upbringing and Education of a Child with Congenital Malformations, Focusing on the Conditions of an Inclusive School Environment

Result code in IS VaVaI

<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F61989592%3A15410%2F22%3A73613049" target="_blank" >RIV/61989592:15410/22:73613049 - isvavai.cz</a>

Result on the web

<a href="https://www.mdpi.com/2227-7102/12/5/362/htm?adlt=strict&toWww=1&redig=B8A917A7EABC48AE86F76A1CC31328EC" target="_blank" >https://www.mdpi.com/2227-7102/12/5/362/htm?adlt=strict&toWww=1&redig=B8A917A7EABC48AE86F76A1CC31328EC</a>

DOI - Digital Object Identifier

<a href="http://dx.doi.org/10.3390/educsci12050362" target="_blank" >10.3390/educsci12050362</a>

Result language

angličtina

Original language name

Family Experiences with the Upbringing and Education of a Child with Congenital Malformations, Focusing on the Conditions of an Inclusive School Environment

Original language description

The birth of a child with congenital malformation and serious illness impacts the experiences of all family members and the educational process, but there are only rare descriptions of such cases in the literature. The aim of this study is to understand better the lived experiences of a Czech family who have a child with congenital malformations with a focus on his education in an inclusive environment. The study is based on van Manen&apos;s methodology and autobiographic (or semi-structured) interviews with Karl (19), his mother (46), and his father (49). Data were analyzed for every participant separately: the mother-repeated challenges associated with increasing new health complications, discomfort of son, school support, the future, optimism, and gratefulness; the father-comprehensive support of the son, including all family; Karl-concealment of disability, difficulties associated with disability, participation, school support, relationship with peers, and the future. Based on the results of this case study, for the education of students with congenital malformation and illness, we recommend including parents, healthcare professionals, and school staff in the mutual teamwork; adapting the timetables and spatial arrangements at school; and coordinating the educational process with necessary interventions.

Czech name

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Czech description

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Type

J_imp - Article in a specialist periodical, which is included in the Web of Science database

CEP classification

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OECD FORD branch

50302 - Education, special (to gifted persons, those with learning disabilities)

Project

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Continuities

I - Institucionalni podpora na dlouhodoby koncepcni rozvoj vyzkumne organizace

Publication year

2022

Confidentiality

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Name of the periodical

Education Sciences

ISSN

2227-7102

e-ISSN

—

Volume of the periodical

12

Issue of the periodical within the volume

5

Country of publishing house

CH - SWITZERLAND

Number of pages

14

Pages from-to

362

UT code for WoS article

000801559900001

EID of the result in the Scopus database

2-s2.0-85131095290