The path to independent living: lived experiences of inclusive education for one of a set of twins with disabilities and her parents
The result's identifiers
Result code in IS VaVaI
<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F61989592%3A15410%2F23%3A73623422" target="_blank" >RIV/61989592:15410/23:73623422 - isvavai.cz</a>
Result on the web
<a href="https://www.tandfonline.com/doi/full/10.1080/08856257.2023.2216565" target="_blank" >https://www.tandfonline.com/doi/full/10.1080/08856257.2023.2216565</a>
DOI - Digital Object Identifier
<a href="http://dx.doi.org/10.1080/08856257.2023.2216565" target="_blank" >10.1080/08856257.2023.2216565</a>
Alternative languages
Result language
angličtina
Original language name
The path to independent living: lived experiences of inclusive education for one of a set of twins with disabilities and her parents
Original language description
This study describes the case of a student with congenital intestinal perforations and her experience with inclusive education in the Czech Republic. She is also a sister of an identical twin with cerebral palsy. The data were gained from semi-structured interviews and bio-graphical narratives of the student during her studies at the grammar school and from her parents. Van Manen's analyses of lived experiences was used to identify important themes for each participant. The overarching themes present in their narratives concerned Lucy's future and the choice of the most appropriate educational environment. The parents' narratives focused more on barriers to inclusive education, benefits of inclusive environments, medical and educational care and family support based on close cooperation with school. For Lucy, the dominant theme was being a sister with a less severe disability and caretaking of her sister. In addition to enhancing the understanding of different needs of a student with congenital malformations and her parents' experiences with inclusive education, it helped us to explore how the specific sibling's constellation within her family and school contexts impacts her personal perspective on life, driven strongly by a wish for independence.
Czech name
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Czech description
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Classification
Type
J<sub>imp</sub> - Article in a specialist periodical, which is included in the Web of Science database
CEP classification
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OECD FORD branch
50302 - Education, special (to gifted persons, those with learning disabilities)
Result continuities
Project
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Continuities
I - Institucionalni podpora na dlouhodoby koncepcni rozvoj vyzkumne organizace
Others
Publication year
2023
Confidentiality
S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů
Data specific for result type
Name of the periodical
European Journal of Special Needs Education
ISSN
0885-6257
e-ISSN
1469-591X
Volume of the periodical
39
Issue of the periodical within the volume
3
Country of publishing house
GB - UNITED KINGDOM
Number of pages
13
Pages from-to
487-499
UT code for WoS article
000995250500001
EID of the result in the Scopus database
2-s2.0-85160571162