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Partnering to change the world for people with haemophilia: 6(th) Haemophilia Global Summit, Prague, Czech Republic, 24-26(th) September 2015

The result's identifiers

  • Result code in IS VaVaI

    <a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F65269705%3A_____%2F16%3A00066304" target="_blank" >RIV/65269705:_____/16:00066304 - isvavai.cz</a>

  • Alternative codes found

    RIV/00216224:14110/16:00093441

  • Result on the web

    <a href="http://dx.doi.org/10.1111/ejh.12761" target="_blank" >http://dx.doi.org/10.1111/ejh.12761</a>

  • DOI - Digital Object Identifier

    <a href="http://dx.doi.org/10.1111/ejh.12761" target="_blank" >10.1111/ejh.12761</a>

Alternative languages

  • Result language

    angličtina

  • Original language name

    Partnering to change the world for people with haemophilia: 6(th) Haemophilia Global Summit, Prague, Czech Republic, 24-26(th) September 2015

  • Original language description

    The 6(th) Haemophilia Global Summit was held in Prague, Czech Republic, in September 2015. The programme was designed by an independent Scientific Steering Committee of haemophilia experts and aimed to share optimal management strategies for haemophilia at all life stages, explore recent potential advances in the management of haemophilia A and B and discuss challenges in haemophilia care. In this supplement from the meeting, Dan Hart reviews the lessons that can be learnt from cost-constrained environments with regard to improving care for people with haemophilia globally. Sébastien Lobet discusses the importance of physical activity for optimising care and Roseline d'Oiron and Jan Blatný consider the role of real-world data in understanding the effect of treatment in a clinical setting over the long term and the true impact of treatment on the day-to-day life of the patient. Gili Kenet addresses the current challenges relating to the optimal management of prophylaxis, and Gerry Dolan and Cedric Hermans discuss the value of pharmacokinetic (PK) parameters in informing treatment decisions. Cedric Hermans and Valérie Libotte explore the importance of considering social and occupational development factors as an integral part of haemophilia care, and Jan Astermark reviews key strategies to predict and prevent inhibitor development.

  • Czech name

  • Czech description

Classification

  • Type

    J<sub>x</sub> - Unclassified - Peer-reviewed scientific article (Jimp, Jsc and Jost)

  • CEP classification

    FD - Oncology and haematology

  • OECD FORD branch

Result continuities

  • Project

  • Continuities

    N - Vyzkumna aktivita podporovana z neverejnych zdroju

Others

  • Publication year

    2016

  • Confidentiality

    S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Data specific for result type

  • Name of the periodical

    European Journal of Haematology

  • ISSN

    0902-4441

  • e-ISSN

  • Volume of the periodical

    97

  • Issue of the periodical within the volume

    SI

  • Country of publishing house

    US - UNITED STATES

  • Number of pages

    21

  • Pages from-to

    3-23

  • UT code for WoS article

    000378726200001

  • EID of the result in the Scopus database