Social participation of children and adolescents with progressive neuromuscular disease in leisure and school: Theoretical background
The result's identifiers
Result code in IS VaVaI
<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F61989592%3A15410%2F25%3A73630101" target="_blank" >RIV/61989592:15410/25:73630101 - isvavai.cz</a>
Result on the web
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DOI - Digital Object Identifier
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Alternative languages
Result language
angličtina
Original language name
Social participation of children and adolescents with progressive neuromuscular disease in leisure and school: Theoretical background
Original language description
The study explores the social participation of children and adolescents with severe progressive neuromuscular diseases (NMD), such as spinal muscular atrophy (SMA) and Duchenne muscular dystrophy (DMD). The aim of the paper is to analyze factors influencing social engagement in this population, identify barriers to their full participation in society, and propose measures to improve their psychosocial functioning. Research findings indicate that support from family, teachers, and peers significantly contributes to increased self-esteem, independence, and overall quality of life. Key barriers to social participation include environmental obstacles, individual differences in disease progression, a lack of understanding of NMD specifics by peers and society, fatigue, low self-esteem, and limited opportunities for leisure activities. The study concludes with recommendations for school practices aimed at fostering social participation, enhancing self-confidence, and promoting the autonomy of children with NMD, enabling them to function effectively in daily life and actively engage in social activities.
Czech name
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Czech description
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Classification
Type
D - Article in proceedings
CEP classification
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OECD FORD branch
50302 - Education, special (to gifted persons, those with learning disabilities)
Result continuities
Project
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Continuities
S - Specificky vyzkum na vysokych skolach
Others
Publication year
2025
Confidentiality
S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů
Data specific for result type
Article name in the collection
cof VIAC 2025
ISBN
978-80-88203-41-4
ISSN
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e-ISSN
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Number of pages
7
Pages from-to
13-19
Publisher name
Czech Institute of Academic Education, z.s.
Place of publication
Prague
Event location
Virtual
Event date
Aug 28, 2025
Type of event by nationality
WRD - Celosvětová akce
UT code for WoS article
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