Perceptions, expectations, and experiences of gynecological cancer patients: a pan-European ESGO-ENGAGe survey

Kód výsledku v IS VaVaI

<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F00064165%3A_____%2F19%3A10400748" target="_blank" >RIV/00064165:_____/19:10400748 - isvavai.cz</a>

Nalezeny alternativní kódy

RIV/00216208:11120/19:43918745

Výsledek na webu

<a href="https://verso.is.cuni.cz/pub/verso.fpl?fname=obd_publikace_handle&handle=U4QNjXDmLQ" target="_blank" >https://verso.is.cuni.cz/pub/verso.fpl?fname=obd_publikace_handle&handle=U4QNjXDmLQ</a>

DOI - Digital Object Identifier

<a href="http://dx.doi.org/10.1136/ijgc-2019-000567" target="_blank" >10.1136/ijgc-2019-000567</a>

Jazyk výsledku

angličtina

Název v původním jazyce

Perceptions, expectations, and experiences of gynecological cancer patients: a pan-European ESGO-ENGAGe survey

Popis výsledku v původním jazyce

Gynecological cancers account for a significant amount of all cancers among women. In 2018, cervical-, uterine-, and ovarian- cancers accounted for 13.7% of all cancers among women worldwide,1 and it is estimated that each year gynecological cancers cause half a million deaths worldwide by an incidence of over a million new cases,2 despite the fact that a significant proportion of gynecological cancers may be preventable.3 Gynecological cancers have a significant impact on the reproductive and sexual health of affected patients.4 5 During the treatment journey, not just medical care, but also adequate supportive care including good communication with healthcare professionals,6 networking with other patients and having access to valuable information in printed and video materials,7 and support by patient advocacy groups,8 all have been shown to contribute in reducing the levels of stress and anxiety experienced by patients. In an effort to capture the overall perception and needs of gynecological cancer patients, ESGO-Engage carried out a cross-national survey in 10 European countries. Established in 2012 by ESGO- (The European Society of Gynecological Oncology) ENGAGe (Network of Gynecological Cancer Advocacy Groups) is a network of European patient advocacy groups representing all gynecological cancers. The main goal of the research was to establish a baseline of unmet needs, attitudes, and behavioral patterns of gynecological cancer patients during treatment, identify areas of improvement relating to patient-doctor communication aspects but also the overall quality of care, so that we can help better navigate treatment pathways and advocate for patients&apos; needs and access to a more holistic approach in Europe, especially in the area of supportive care: an approach that goes beyond medical care, with elements of psychological and social needs, sexual counseling, access to broad information and resources, including patient support and advocacy organizations, and improving of communication with healthcare professionals. Among firsts in its class in scope and outreach in a wide range of countries in Europe, it aimed to provide an overview of not one specific but all gynecological cancers with an emphasis on patients&apos; perceptions of quality of care and expectations.

Název v anglickém jazyce

Perceptions, expectations, and experiences of gynecological cancer patients: a pan-European ESGO-ENGAGe survey

Popis výsledku anglicky

Gynecological cancers account for a significant amount of all cancers among women. In 2018, cervical-, uterine-, and ovarian- cancers accounted for 13.7% of all cancers among women worldwide,1 and it is estimated that each year gynecological cancers cause half a million deaths worldwide by an incidence of over a million new cases,2 despite the fact that a significant proportion of gynecological cancers may be preventable.3 Gynecological cancers have a significant impact on the reproductive and sexual health of affected patients.4 5 During the treatment journey, not just medical care, but also adequate supportive care including good communication with healthcare professionals,6 networking with other patients and having access to valuable information in printed and video materials,7 and support by patient advocacy groups,8 all have been shown to contribute in reducing the levels of stress and anxiety experienced by patients. In an effort to capture the overall perception and needs of gynecological cancer patients, ESGO-Engage carried out a cross-national survey in 10 European countries. Established in 2012 by ESGO- (The European Society of Gynecological Oncology) ENGAGe (Network of Gynecological Cancer Advocacy Groups) is a network of European patient advocacy groups representing all gynecological cancers. The main goal of the research was to establish a baseline of unmet needs, attitudes, and behavioral patterns of gynecological cancer patients during treatment, identify areas of improvement relating to patient-doctor communication aspects but also the overall quality of care, so that we can help better navigate treatment pathways and advocate for patients&apos; needs and access to a more holistic approach in Europe, especially in the area of supportive care: an approach that goes beyond medical care, with elements of psychological and social needs, sexual counseling, access to broad information and resources, including patient support and advocacy organizations, and improving of communication with healthcare professionals. Among firsts in its class in scope and outreach in a wide range of countries in Europe, it aimed to provide an overview of not one specific but all gynecological cancers with an emphasis on patients&apos; perceptions of quality of care and expectations.

Druh

J_imp - Článek v periodiku v databázi Web of Science

CEP obor

—

OECD FORD obor

30214 - Obstetrics and gynaecology

Projekt

—

Návaznosti

N - Vyzkumna aktivita podporovana z neverejnych zdroju

Rok uplatnění

2019

Kód důvěrnosti údajů

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Název periodika

International Journal of Gynecological Cancer

ISSN

1048-891X

e-ISSN

—

Svazek periodika

29

Číslo periodika v rámci svazku

9

Stát vydavatele periodika

US - Spojené státy americké

Počet stran výsledku

6

Strana od-do

1425-1430

Kód UT WoS článku

000496539500015

EID výsledku v databázi Scopus

2-s2.0-85071904478