The Open Brain Consent: Informing research participants and obtaining consent to share brain imaging data

Kód výsledku v IS VaVaI

<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F00159816%3A_____%2F21%3A00075186" target="_blank" >RIV/00159816:_____/21:00075186 - isvavai.cz</a>

Nalezeny alternativní kódy

RIV/00216224:14110/21:00122118

Výsledek na webu

<a href="https://onlinelibrary.wiley.com/doi/10.1002/hbm.25351" target="_blank" >https://onlinelibrary.wiley.com/doi/10.1002/hbm.25351</a>

DOI - Digital Object Identifier

<a href="http://dx.doi.org/10.1002/hbm.25351" target="_blank" >10.1002/hbm.25351</a>

Jazyk výsledku

angličtina

Název v původním jazyce

The Open Brain Consent: Informing research participants and obtaining consent to share brain imaging data

Popis výsledku v původním jazyce

Having the means to share research data openly is essential to modern science. For human research, a key aspect in this endeavor is obtaining consent from participants, not just to take part in a study, which is a basic ethical principle, but also to share their data with the scientific community. To ensure that the participants&apos; privacy is respected, national and/or supranational regulations and laws are in place. It is, however, not always clear to researchers what the implications of those are, nor how to comply with them. The Open Brain Consent (https://open-brain-consent.readthedocs.io) is an international initiative that aims to provide researchers in the brain imaging community with information about data sharing options and tools. We present here a short history of this project and its latest developments, and share pointers to consent forms, including a template consent form that is compliant with the EU general data protection regulation. We also share pointers to an associated data user agreement that is not only useful in the EU context, but also for any researchers dealing with personal (clinical) data elsewhere.

Název v anglickém jazyce

The Open Brain Consent: Informing research participants and obtaining consent to share brain imaging data

Popis výsledku anglicky

Having the means to share research data openly is essential to modern science. For human research, a key aspect in this endeavor is obtaining consent from participants, not just to take part in a study, which is a basic ethical principle, but also to share their data with the scientific community. To ensure that the participants&apos; privacy is respected, national and/or supranational regulations and laws are in place. It is, however, not always clear to researchers what the implications of those are, nor how to comply with them. The Open Brain Consent (https://open-brain-consent.readthedocs.io) is an international initiative that aims to provide researchers in the brain imaging community with information about data sharing options and tools. We present here a short history of this project and its latest developments, and share pointers to consent forms, including a template consent form that is compliant with the EU general data protection regulation. We also share pointers to an associated data user agreement that is not only useful in the EU context, but also for any researchers dealing with personal (clinical) data elsewhere.

Druh

J_imp - Článek v periodiku v databázi Web of Science

CEP obor

—

OECD FORD obor

30103 - Neurosciences (including psychophysiology)

Projekt

<a href="/cs/project/LTC20027" target="_blank" >LTC20027: Mapping of glioma heterogeneity and infiltration extend by MR imaging biomarkers</a><br>

Návaznosti

P - Projekt vyzkumu a vyvoje financovany z verejnych zdroju (s odkazem do CEP)

Rok uplatnění

2021

Kód důvěrnosti údajů

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Název periodika

Human Brain Mapping

ISSN

1065-9471

e-ISSN

—

Svazek periodika

42

Číslo periodika v rámci svazku

7

Stát vydavatele periodika

US - Spojené státy americké

Počet stran výsledku

7

Strana od-do

1945-1951

Kód UT WoS článku

000613327300001

EID výsledku v databázi Scopus

—