Health related quality of life measure in systemic pediatric rheumatic diseases and its translation to different languages: an international collaboration

Kód výsledku v IS VaVaI

<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F00216208%3A11110%2F14%3A10293147" target="_blank" >RIV/00216208:11110/14:10293147 - isvavai.cz</a>

Nalezeny alternativní kódy

RIV/00216208:11130/14:10293147 RIV/00064203:_____/14:10293147 RIV/00064165:_____/14:10293147

Výsledek na webu

<a href="http://dx.doi.org/10.1186/1546-0096-12-49" target="_blank" >http://dx.doi.org/10.1186/1546-0096-12-49</a>

DOI - Digital Object Identifier

<a href="http://dx.doi.org/10.1186/1546-0096-12-49" target="_blank" >10.1186/1546-0096-12-49</a>

Jazyk výsledku

angličtina

Název v původním jazyce

Health related quality of life measure in systemic pediatric rheumatic diseases and its translation to different languages: an international collaboration

Popis výsledku v původním jazyce

Background: Rheumatic diseases in children are associated with significant morbidity and poor health-related quality of life (HRQOL). There is no health-related quality of life (HRQOL) scale available specifically for children with less common rheumaticdiseases. These diseases share several features with systemic lupus erythematosus (SLE) such as their chronic episodic nature, multi-systemic involvement, and the need for immunosuppressive medications. HRQOL scale developed for pediatric SLE will likelybe applicable to children with systemic inflammatory diseases. Findings: We adapted Simple Measure of Impact of Lupus Erythematosus in Youngsters (SMILEY (c)) to Simple Measure of Impact of Illness in Youngsters (SMILY (c)-Illness) and had it reviewed by pediatric rheumatologists for its appropriateness and cultural suitability. We tested SMILY (c)-Illness in patients with inflammatory rheumatic diseases and then translated it into 28 languages. Nineteen children (79% female, n= 15) and

Název v anglickém jazyce

Health related quality of life measure in systemic pediatric rheumatic diseases and its translation to different languages: an international collaboration

Popis výsledku anglicky

Background: Rheumatic diseases in children are associated with significant morbidity and poor health-related quality of life (HRQOL). There is no health-related quality of life (HRQOL) scale available specifically for children with less common rheumaticdiseases. These diseases share several features with systemic lupus erythematosus (SLE) such as their chronic episodic nature, multi-systemic involvement, and the need for immunosuppressive medications. HRQOL scale developed for pediatric SLE will likelybe applicable to children with systemic inflammatory diseases. Findings: We adapted Simple Measure of Impact of Lupus Erythematosus in Youngsters (SMILEY (c)) to Simple Measure of Impact of Illness in Youngsters (SMILY (c)-Illness) and had it reviewed by pediatric rheumatologists for its appropriateness and cultural suitability. We tested SMILY (c)-Illness in patients with inflammatory rheumatic diseases and then translated it into 28 languages. Nineteen children (79% female, n= 15) and

Druh

J_x - Nezařazeno - Článek v odborném periodiku (Jimp, Jsc a Jost)

CEP obor

FG - Pediatrie

OECD FORD obor

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Projekt

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Návaznosti

I - Institucionalni podpora na dlouhodoby koncepcni rozvoj vyzkumne organizace

Rok uplatnění

2014

Kód důvěrnosti údajů

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Název periodika

Pediatric Rheumatology

ISSN

1546-0096

e-ISSN

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Svazek periodika

12

Číslo periodika v rámci svazku

neuveden

Stát vydavatele periodika

US - Spojené státy americké

Počet stran výsledku

6

Strana od-do

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Kód UT WoS článku

000346520700001

EID výsledku v databázi Scopus

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