'I couldn't live without hope': A qualitative study using reflexive thematic analysis on approaches to hope and prognostic awareness among people with advanced disease
Identifikátory výsledku
Kód výsledku v IS VaVaI
<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F00216208%3A11120%2F25%3A43928258" target="_blank" >RIV/00216208:11120/25:43928258 - isvavai.cz</a>
Výsledek na webu
<a href="https://doi.org/10.1177/02692163251323558" target="_blank" >https://doi.org/10.1177/02692163251323558</a>
DOI - Digital Object Identifier
<a href="http://dx.doi.org/10.1177/02692163251323558" target="_blank" >10.1177/02692163251323558</a>
Alternativní jazyky
Jazyk výsledku
angličtina
Název v původním jazyce
'I couldn't live without hope': A qualitative study using reflexive thematic analysis on approaches to hope and prognostic awareness among people with advanced disease
Popis výsledku v původním jazyce
BACKGROUND: Hope plays a pivotal role in enhancing the quality of life and coping strategies of individuals living with advanced diseases. The nature of the relationship between hope and prognostic awareness is unclear. AIM: To explore the experiences and meanings of hope and their association with prognostic awareness among people with advanced incurable diseases. DESIGN: Qualitative phenomenological study using reflexive thematic analysis of semi-structured interviews. SETTING/PARTICIPANTS: Interviews with 24 participants aged 30-99 years with advanced incurable disease were conducted in hospices and hospitals in the Czech Republic. RESULTS: We generated four distinct approaches to hope and prognostic awareness: Technical, Spiritual, Minimalist and Pragmatic. Each approach exhibited unique cognitive, emotional and behavioural dimensions of hope and prognostic awareness. The Technical and Minimalist approaches showed fluctuating hope influenced by medical updates, while the Spiritual and Pragmatic approaches demonstrated stable hope resilient to prognostic information. CONCLUSIONS: Recognizing these diverse hope approaches can guide tailored interventions in palliative care. Healthcare providers should adapt their communication strategies based on people's predominant hope orientations to support effective coping and enhance end-of-life care outcomes. This study sheds light on how different individuals navigate hope amidst terminal illnesses, providing insights into the nuanced psychological and emotional dynamics that influence their coping mechanisms.
Název v anglickém jazyce
'I couldn't live without hope': A qualitative study using reflexive thematic analysis on approaches to hope and prognostic awareness among people with advanced disease
Popis výsledku anglicky
BACKGROUND: Hope plays a pivotal role in enhancing the quality of life and coping strategies of individuals living with advanced diseases. The nature of the relationship between hope and prognostic awareness is unclear. AIM: To explore the experiences and meanings of hope and their association with prognostic awareness among people with advanced incurable diseases. DESIGN: Qualitative phenomenological study using reflexive thematic analysis of semi-structured interviews. SETTING/PARTICIPANTS: Interviews with 24 participants aged 30-99 years with advanced incurable disease were conducted in hospices and hospitals in the Czech Republic. RESULTS: We generated four distinct approaches to hope and prognostic awareness: Technical, Spiritual, Minimalist and Pragmatic. Each approach exhibited unique cognitive, emotional and behavioural dimensions of hope and prognostic awareness. The Technical and Minimalist approaches showed fluctuating hope influenced by medical updates, while the Spiritual and Pragmatic approaches demonstrated stable hope resilient to prognostic information. CONCLUSIONS: Recognizing these diverse hope approaches can guide tailored interventions in palliative care. Healthcare providers should adapt their communication strategies based on people's predominant hope orientations to support effective coping and enhance end-of-life care outcomes. This study sheds light on how different individuals navigate hope amidst terminal illnesses, providing insights into the nuanced psychological and emotional dynamics that influence their coping mechanisms.
Klasifikace
Druh
J<sub>imp</sub> - Článek v periodiku v databázi Web of Science
CEP obor
—
OECD FORD obor
30301 - Social biomedical sciences (includes family planning, sexual health, psycho-oncology, political and social effects of biomedical research)
Návaznosti výsledku
Projekt
<a href="/cs/project/GA23-07747S" target="_blank" >GA23-07747S: Naděje a prognostické uvědomování u pacientů s pokročilým onemocněním</a><br>
Návaznosti
P - Projekt vyzkumu a vyvoje financovany z verejnych zdroju (s odkazem do CEP)
Ostatní
Rok uplatnění
2025
Kód důvěrnosti údajů
S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů
Údaje specifické pro druh výsledku
Název periodika
Palliative Medicine
ISSN
0269-2163
e-ISSN
1477-030X
Svazek periodika
39
Číslo periodika v rámci svazku
4
Stát vydavatele periodika
GB - Spojené království Velké Británie a Severního Irska
Počet stran výsledku
10
Strana od-do
473-482
Kód UT WoS článku
001442861000001
EID výsledku v databázi Scopus
2-s2.0-105000209093