Quality of life in patients with gastroschisis is comparable with the general population: A questionnaire survey

Kód výsledku v IS VaVaI

<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F00216208%3A11130%2F17%3A10373904" target="_blank" >RIV/00216208:11130/17:10373904 - isvavai.cz</a>

Nalezeny alternativní kódy

RIV/00064203:_____/17:10373904

Výsledek na webu

<a href="https://doi.org/10.5507/bp.2016.059" target="_blank" >https://doi.org/10.5507/bp.2016.059</a>

DOI - Digital Object Identifier

<a href="http://dx.doi.org/10.5507/bp.2016.059" target="_blank" >10.5507/bp.2016.059</a>

Jazyk výsledku

angličtina

Název v původním jazyce

Quality of life in patients with gastroschisis is comparable with the general population: A questionnaire survey

Popis výsledku v původním jazyce

Aim. To evaluate long-term quality of life and somatic growth of patients with gastroschisis and compare them with the general population. Methods. We performed a questionnaire survey of the quality of life of our patients treated between 2004-2012. Results. A questionnaire was sent to our 56 patients with gastroschisis, 38 mothers of patients (68%) responded to the questionnaire. 33 of 38 mothers claim that the quality of life of their child is very good, 4 of them responded that it is good. 1 mother confessed that the quality of life was very poor. Anthropometric data show comparable results with the standard population except for patients of 1 year of age who still have lower weight (P&lt;0.001) and body height in the 5th percentile and patients of 3 years of age who are also significantly thinner. 13% of patients in our study group have gastrointestinal problems. 9 patients (24%) attend follow-up at the neurological center (Attention Deficit Hyperactivity Disorder n=6, mental retardation n=1, dysarthria n=2), however, overall intellectual abilities are within normal range. 7 patients underwent surgery for umbilical (n=3) or inguinal hernia (n=4), 2 patients were operated on for undescended testicles, 3 patients were operated on for an adhesive ileus. 92% of mothers are very satisfied with the cosmetic result of the scar. Conclusion. The study has shown that the majority of patients after operation of gastroschisis have a very good quality of life without limitation in comparison with the general population. The presented anthropometric data confirm that the development of patients with gastroschisis is favourable.

Název v anglickém jazyce

Quality of life in patients with gastroschisis is comparable with the general population: A questionnaire survey

Popis výsledku anglicky

Aim. To evaluate long-term quality of life and somatic growth of patients with gastroschisis and compare them with the general population. Methods. We performed a questionnaire survey of the quality of life of our patients treated between 2004-2012. Results. A questionnaire was sent to our 56 patients with gastroschisis, 38 mothers of patients (68%) responded to the questionnaire. 33 of 38 mothers claim that the quality of life of their child is very good, 4 of them responded that it is good. 1 mother confessed that the quality of life was very poor. Anthropometric data show comparable results with the standard population except for patients of 1 year of age who still have lower weight (P&lt;0.001) and body height in the 5th percentile and patients of 3 years of age who are also significantly thinner. 13% of patients in our study group have gastrointestinal problems. 9 patients (24%) attend follow-up at the neurological center (Attention Deficit Hyperactivity Disorder n=6, mental retardation n=1, dysarthria n=2), however, overall intellectual abilities are within normal range. 7 patients underwent surgery for umbilical (n=3) or inguinal hernia (n=4), 2 patients were operated on for undescended testicles, 3 patients were operated on for an adhesive ileus. 92% of mothers are very satisfied with the cosmetic result of the scar. Conclusion. The study has shown that the majority of patients after operation of gastroschisis have a very good quality of life without limitation in comparison with the general population. The presented anthropometric data confirm that the development of patients with gastroschisis is favourable.

Druh

J_imp - Článek v periodiku v databázi Web of Science

CEP obor

—

OECD FORD obor

30212 - Surgery

Projekt

—

Návaznosti

S - Specificky vyzkum na vysokych skolach<br>I - Institucionalni podpora na dlouhodoby koncepcni rozvoj vyzkumne organizace

Rok uplatnění

2017

Kód důvěrnosti údajů

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Název periodika

Biomedical Papers

ISSN

1213-8118

e-ISSN

—

Svazek periodika

161

Číslo periodika v rámci svazku

1

Stát vydavatele periodika

CZ - Česká republika

Počet stran výsledku

5

Strana od-do

75-79

Kód UT WoS článku

000398093500011

EID výsledku v databázi Scopus

2-s2.0-85016234913