Insights into the cystic fibrosis care in Eastern Europe: Results of survey

Kód výsledku v IS VaVaI

<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F00216208%3A11130%2F18%3A10376346" target="_blank" >RIV/00216208:11130/18:10376346 - isvavai.cz</a>

Nalezeny alternativní kódy

RIV/00216208:11310/18:10376346 RIV/00064203:_____/18:10376346

Výsledek na webu

<a href="https://doi.org/10.1016/j.jcf.2018.04.003" target="_blank" >https://doi.org/10.1016/j.jcf.2018.04.003</a>

DOI - Digital Object Identifier

<a href="http://dx.doi.org/10.1016/j.jcf.2018.04.003" target="_blank" >10.1016/j.jcf.2018.04.003</a>

Jazyk výsledku

angličtina

Název v původním jazyce

Insights into the cystic fibrosis care in Eastern Europe: Results of survey

Popis výsledku v původním jazyce

Background: The European cystic fibrosis (CF) Society Standards of Care were set to facilitate the delivery of high-quality care throughout Europe. However, their implementation may be difficult for less economically advantaged countries. This survey was performed to explore the gap in the knowledge of the level of CF care in Eastern Europe. Methods: Questionnaires were sent online to one CF professional and one CF patient representative for every Eastern European country. Results: Although most respondents indicated the presence of CF centres, disparities in their framework among individual countries and between them and the European CF Standards of Care became apparent. A minority of countries achieved CF centre recognition by the government (6 of 16), provided CF care for adults (6 countries) and had a multidisciplinary team with all team members represented (2 countries). Patients were significantly more critical in the evaluation of various aspects of CF care than physicians, especially in the Balkan region. Conclusions: The survey results indicate that the organization and level of CF care across Eastern Europe is largely variable and lacks some of its fundamental attributes in several countries.

Název v anglickém jazyce

Insights into the cystic fibrosis care in Eastern Europe: Results of survey

Popis výsledku anglicky

Background: The European cystic fibrosis (CF) Society Standards of Care were set to facilitate the delivery of high-quality care throughout Europe. However, their implementation may be difficult for less economically advantaged countries. This survey was performed to explore the gap in the knowledge of the level of CF care in Eastern Europe. Methods: Questionnaires were sent online to one CF professional and one CF patient representative for every Eastern European country. Results: Although most respondents indicated the presence of CF centres, disparities in their framework among individual countries and between them and the European CF Standards of Care became apparent. A minority of countries achieved CF centre recognition by the government (6 of 16), provided CF care for adults (6 countries) and had a multidisciplinary team with all team members represented (2 countries). Patients were significantly more critical in the evaluation of various aspects of CF care than physicians, especially in the Balkan region. Conclusions: The survey results indicate that the organization and level of CF care across Eastern Europe is largely variable and lacks some of its fundamental attributes in several countries.

Druh

J_imp - Článek v periodiku v databázi Web of Science

CEP obor

—

OECD FORD obor

10606 - Microbiology

Projekt

—

Návaznosti

I - Institucionalni podpora na dlouhodoby koncepcni rozvoj vyzkumne organizace

Rok uplatnění

2018

Kód důvěrnosti údajů

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Název periodika

Journal of Cystic Fibrosis

ISSN

1569-1993

e-ISSN

—

Svazek periodika

17

Číslo periodika v rámci svazku

4

Stát vydavatele periodika

NL - Nizozemsko

Počet stran výsledku

3

Strana od-do

475-477

Kód UT WoS článku

000439672700010

EID výsledku v databázi Scopus

2-s2.0-85045846427