Mezi bolestí a nedůvěrou: Sociální kontext sporných onemocnění na příkladu fibromyalgie

Kód výsledku v IS VaVaI

<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F00216208%3A11230%2F25%3A10505145" target="_blank" >RIV/00216208:11230/25:10505145 - isvavai.cz</a>

Výsledek na webu

<a href="https://verso.is.cuni.cz/pub/verso.fpl?fname=obd_publikace_handle&handle=O.6GIczmKT" target="_blank" >https://verso.is.cuni.cz/pub/verso.fpl?fname=obd_publikace_handle&handle=O.6GIczmKT</a>

DOI - Digital Object Identifier

<a href="http://dx.doi.org/10.31577/sociologia.2025.57.5.14" target="_blank" >10.31577/sociologia.2025.57.5.14</a>

Jazyk výsledku

čeština

Název v původním jazyce

Mezi bolestí a nedůvěrou: Sociální kontext sporných onemocnění na příkladu fibromyalgie

Popis výsledku v původním jazyce

This study explores the illness narratives of individuals diagnosed with fibromyalgia, focusing on how the condition&apos;s invisibility and the challenges surrounding the diagnostic process shape patients&apos; everyday experiences and their inter-actions with healthcare and social systems. Grounded in the framework of the sociology of diagnosis, the study highlights how medical diagnoses are not merely clinical acts but are influenced by socio-political contexts, reflecting power dynamics between patients and physicians and embodying societal norms around illness and normality. Fibromyalgia, as a &quot;contested illness,&quot; intensifies these dynamics, revealing the complexities of diagnosing conditions that lack clinical evidence. Through in-depth interviews with 10 participants diagnosed with fibromyalgia, the study examines how their subjective experiences of illness affect their trust in medical expertise and the broader social system, contributing to feelings of invalidation and a breakdown of institutional trust. The findings underscore the broader implications of contested diagnoses for the construction of illness meanings and access to social and medical resources.

Název v anglickém jazyce

Between Pain and Distrust: The Social Context of Contested Illnesses Viewed through the Case of Fibromyalgia

Popis výsledku anglicky

This study explores the illness narratives of individuals diagnosed with fibromyalgia, focusing on how the condition&apos;s invisibility and the challenges surrounding the diagnostic process shape patients&apos; everyday experiences and their inter-actions with healthcare and social systems. Grounded in the framework of the sociology of diagnosis, the study highlights how medical diagnoses are not merely clinical acts but are influenced by socio-political contexts, reflecting power dynamics between patients and physicians and embodying societal norms around illness and normality. Fibromyalgia, as a &quot;contested illness,&quot; intensifies these dynamics, revealing the complexities of diagnosing conditions that lack clinical evidence. Through in-depth interviews with 10 participants diagnosed with fibromyalgia, the study examines how their subjective experiences of illness affect their trust in medical expertise and the broader social system, contributing to feelings of invalidation and a breakdown of institutional trust. The findings underscore the broader implications of contested diagnoses for the construction of illness meanings and access to social and medical resources.

Druh

J_imp - Článek v periodiku v databázi Web of Science

CEP obor

—

OECD FORD obor

50401 - Sociology

Projekt

<a href="/cs/project/LX22NPO5101" target="_blank" >LX22NPO5101: Národní institut pro výzkum socioekonomických dopadů nemocí a systémových rizik</a><br>

Návaznosti

P - Projekt vyzkumu a vyvoje financovany z verejnych zdroju (s odkazem do CEP)

Rok uplatnění

2025

Kód důvěrnosti údajů

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Název periodika

Sociológia

ISSN

0049-1225

e-ISSN

1336-8613

Svazek periodika

57

Číslo periodika v rámci svazku

5

Stát vydavatele periodika

SK - Slovenská republika

Počet stran výsledku

23

Strana od-do

387-409

Kód UT WoS článku

001599927500001

EID výsledku v databázi Scopus

2-s2.0-105023908163