Main topics related to the disease, death, and dying in communication between parents and their adolescent children with incurable cancer

Kód výsledku v IS VaVaI

<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F47122099%3A_____%2F21%3AN0000014" target="_blank" >RIV/47122099:_____/21:N0000014 - isvavai.cz</a>

Výsledek na webu

<a href="https://doi.org/10.4149/BLL_2021_091" target="_blank" >https://doi.org/10.4149/BLL_2021_091</a>

DOI - Digital Object Identifier

<a href="http://dx.doi.org/10.4149/BLL_2021_091" target="_blank" >10.4149/BLL_2021_091</a>

Jazyk výsledku

angličtina

Název v původním jazyce

Main topics related to the disease, death, and dying in communication between parents and their adolescent children with incurable cancer

Popis výsledku v původním jazyce

OBJECTIVES: The article focuses on main topics related to disease, death, and dying in communication between parents and their adolescent children with this diagnosis. METHODS: We conducted qualitative research comprising 13 interviews with parents who lost their adolescent child to cancer. We used a semi-structured interview and interpretative phenomenological analysis. RESULTS: Results introduced 6 basic topics: mutual protection, openness in the communication about cancer and death, making treatment decisions together, talks at the time of passing, hope, and spiritual experience. CONCLUSION: Adolescents appreciate age-appropriate, open communication about their disease. Talking about the disease and its prognosis appears to be the way from mutual protection to open truthfulness. Openness also includes the participation of adolescents in further treatment. For some parents, it makes sense to constantly protect the child from the fact of death. Caregivers should support discussions about death between parents and their terminally ill adolescent children and accept individual decisions to talk about death (Tab. 1, Ref. 25).

Název v anglickém jazyce

Main topics related to the disease, death, and dying in communication between parents and their adolescent children with incurable cancer

Popis výsledku anglicky

OBJECTIVES: The article focuses on main topics related to disease, death, and dying in communication between parents and their adolescent children with this diagnosis. METHODS: We conducted qualitative research comprising 13 interviews with parents who lost their adolescent child to cancer. We used a semi-structured interview and interpretative phenomenological analysis. RESULTS: Results introduced 6 basic topics: mutual protection, openness in the communication about cancer and death, making treatment decisions together, talks at the time of passing, hope, and spiritual experience. CONCLUSION: Adolescents appreciate age-appropriate, open communication about their disease. Talking about the disease and its prognosis appears to be the way from mutual protection to open truthfulness. Openness also includes the participation of adolescents in further treatment. For some parents, it makes sense to constantly protect the child from the fact of death. Caregivers should support discussions about death between parents and their terminally ill adolescent children and accept individual decisions to talk about death (Tab. 1, Ref. 25).

Druh

J_imp - Článek v periodiku v databázi Web of Science

CEP obor

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OECD FORD obor

50102 - Psychology, special (including therapy for learning, speech, hearing, visual and other physical and mental disabilities);

Projekt

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Návaznosti

N - Vyzkumna aktivita podporovana z neverejnych zdroju

Rok uplatnění

2021

Kód důvěrnosti údajů

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Název periodika

Bratislava Medical Journal

ISSN

0006-9248

e-ISSN

1336-0345

Svazek periodika

12

Číslo periodika v rámci svazku

8

Stát vydavatele periodika

SK - Slovenská republika

Počet stran výsledku

5

Strana od-do

572-576

Kód UT WoS článku

000678623200007

EID výsledku v databázi Scopus

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