The preferences of patients with Parkinson´s disease and their family members

Kód výsledku v IS VaVaI

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Výsledek na webu

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DOI - Digital Object Identifier

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Jazyk výsledku

angličtina

Název v původním jazyce

The preferences of patients with Parkinson´s disease and their family members

Popis výsledku v původním jazyce

Objective: The aim of the research was to determine the preferences of patients with Parkinson´s disease (PD) and their family members for the place of end-of-life care and to compare them according to age, marital status, gender, education and the duration of the disease. Background: Patients with PD often die in hospitals that are not usually the optimal place for terminal care [1]. According to current research, people would prefer to die especially at home [2,3]. However, the preferences in patients with PD are not often identified. Methods: The sample consisted of 134 participants, patients with PD (mean age: 71.4 year) and their family members (mean age: 60.3 year). The preference for the place of end-of-life care was assessed with APND-EOLC questionnaire (The Attitudes of Patients with PND to End-of- Life Care) - area IV - questions determining views of the care system (5 items). Results: Patients (71.0%) as well as family members (59.1%) most often chose the place of end-of-life care at home. The stay in a hospice was chosen only by 11.6% patients and 16.7% family members. The others wish to die in a hospital or in other health and social institution. The difference between patients and family members was statistically significant (p=0.049), patients more often wished to die at home. No statistically significant differences were found in the preference of the place of death by age, marital status, gender, education, and the duration of the disease in patients and family members. Conclusions: Exploring the preference for place of death can help in end-of-life care planning for patients with PD. Also important is the communication about the preference of the place of death between the patient, their family members and the doctor.

Název v anglickém jazyce

The preferences of patients with Parkinson´s disease and their family members

Popis výsledku anglicky

Objective: The aim of the research was to determine the preferences of patients with Parkinson´s disease (PD) and their family members for the place of end-of-life care and to compare them according to age, marital status, gender, education and the duration of the disease. Background: Patients with PD often die in hospitals that are not usually the optimal place for terminal care [1]. According to current research, people would prefer to die especially at home [2,3]. However, the preferences in patients with PD are not often identified. Methods: The sample consisted of 134 participants, patients with PD (mean age: 71.4 year) and their family members (mean age: 60.3 year). The preference for the place of end-of-life care was assessed with APND-EOLC questionnaire (The Attitudes of Patients with PND to End-of- Life Care) - area IV - questions determining views of the care system (5 items). Results: Patients (71.0%) as well as family members (59.1%) most often chose the place of end-of-life care at home. The stay in a hospice was chosen only by 11.6% patients and 16.7% family members. The others wish to die in a hospital or in other health and social institution. The difference between patients and family members was statistically significant (p=0.049), patients more often wished to die at home. No statistically significant differences were found in the preference of the place of death by age, marital status, gender, education, and the duration of the disease in patients and family members. Conclusions: Exploring the preference for place of death can help in end-of-life care planning for patients with PD. Also important is the communication about the preference of the place of death between the patient, their family members and the doctor.

Druh

D - Stať ve sborníku

CEP obor

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OECD FORD obor

30210 - Clinical neurology

Projekt

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Návaznosti

V - Vyzkumna aktivita podporovana z jinych verejnych zdroju

Rok uplatnění

2019

Kód důvěrnosti údajů

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Název statě ve sborníku

Movement Disorders

ISBN

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ISSN

0885-3185

e-ISSN

1531-8257

Počet stran výsledku

1

Strana od-do

252-252

Název nakladatele

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Místo vydání

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Místo konání akce

Nice

Datum konání akce

22. 9. 2019

Typ akce podle státní příslušnosti

EUR - Evropská akce

Kód UT WoS článku

000487785001129