Language validation of a measurement instrument to assess the needs of parents and children in palliative care - a pilot study

Kód výsledku v IS VaVaI

<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F61988987%3A17110%2F24%3AA2503AGZ" target="_blank" >RIV/61988987:17110/24:A2503AGZ - isvavai.cz</a>

Výsledek na webu

<a href="http://kont.zsf.jcu.cz/doi/10.32725/kont.2024.048.html" target="_blank" >http://kont.zsf.jcu.cz/doi/10.32725/kont.2024.048.html</a>

DOI - Digital Object Identifier

<a href="http://dx.doi.org/10.32725/kont.2024.048" target="_blank" >10.32725/kont.2024.048</a>

Jazyk výsledku

angličtina

Název v původním jazyce

Language validation of a measurement instrument to assess the needs of parents and children in palliative care - a pilot study

Popis výsledku v původním jazyce

Introduction: Pediatric palliative care is a specialized form of care provided to children with terminal illnesses or life-threatening conditions. Its aim is not only to control symptoms, but also to improve the overall quality of life of the child and its family. It includes comprehensive support and care that respects the individual needs of the child and its family, including physical, emotional, social, and spiritual aspects. Objective: To translate and implement the language validation of the Pediatric Palliative Care – Parent & Child Needs Survey (PCNeeds) tool and to determine the level of needs of families caring for a child with a life-limiting or life-threatening illness. Methods: To determine the needs of parents of children in palliative care, a quantitative method of a questionnaire survey was used in which 20 parents participated. Data analysis was carried out using descriptive statistics. Results: The highest level of needs of families was in the area of coping with the child’s symptoms, including pain. Parents felt emotional strain, social isolation, and overall pressure on the family, including financial burden. However, they also expressed a high degree of satisfaction in many areas, such as communication with health professionals, clarity of information, and the relationship with their child. Conclusion: The study demonstrated the high internal consistency of the Czech version of the PCNeeds measurement instrument. It will be further tested for psychometric properties in the next stage of the research.

Název v anglickém jazyce

Language validation of a measurement instrument to assess the needs of parents and children in palliative care - a pilot study

Popis výsledku anglicky

Introduction: Pediatric palliative care is a specialized form of care provided to children with terminal illnesses or life-threatening conditions. Its aim is not only to control symptoms, but also to improve the overall quality of life of the child and its family. It includes comprehensive support and care that respects the individual needs of the child and its family, including physical, emotional, social, and spiritual aspects. Objective: To translate and implement the language validation of the Pediatric Palliative Care – Parent & Child Needs Survey (PCNeeds) tool and to determine the level of needs of families caring for a child with a life-limiting or life-threatening illness. Methods: To determine the needs of parents of children in palliative care, a quantitative method of a questionnaire survey was used in which 20 parents participated. Data analysis was carried out using descriptive statistics. Results: The highest level of needs of families was in the area of coping with the child’s symptoms, including pain. Parents felt emotional strain, social isolation, and overall pressure on the family, including financial burden. However, they also expressed a high degree of satisfaction in many areas, such as communication with health professionals, clarity of information, and the relationship with their child. Conclusion: The study demonstrated the high internal consistency of the Czech version of the PCNeeds measurement instrument. It will be further tested for psychometric properties in the next stage of the research.

Druh

J_imp - Článek v periodiku v databázi Web of Science

CEP obor

—

OECD FORD obor

30307 - Nursing

Projekt

—

Návaznosti

S - Specificky vyzkum na vysokych skolach

Rok uplatnění

2024

Kód důvěrnosti údajů

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Název periodika

KONTAKT-JOURNAL OF NURSING AND SOCIAL SCIENCES RELATED TO HEALTH AND ILLNESS

ISSN

1212-4117

e-ISSN

1804-7122

Svazek periodika

—

Číslo periodika v rámci svazku

4

Stát vydavatele periodika

CZ - Česká republika

Počet stran výsledku

7

Strana od-do

347-353

Kód UT WoS článku

001382576000006

EID výsledku v databázi Scopus

2-s2.0-85216229233