I’ll do everything for him / her: the experiences of family caregivers caring for a dying patient at home (a phenomenological qualitative approach

Kód výsledku v IS VaVaI

<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F61989592%3A15120%2F23%3A73619650" target="_blank" >RIV/61989592:15120/23:73619650 - isvavai.cz</a>

Výsledek na webu

<a href="https://cejnm.osu.cz/corproof.php?tartkey=cjn-000000-1175&back=%2Fsearch.php%3Fquery%3DI%2526%25238217%253Bll%2Bdo%2Beverything%2Bfor%2Bhim%2B%252F%2Bher%253A%2Bthe%2Bexperiences%2Bof%2Bfamily%2Bcaregivers%2Bcaring%2Bfor%2Ba%2Bdying%2Bpatient%2Bat%2Bhome%2B%2528a%2Bphenomenological%2Bqualitative%2Bapproach%2Bin%253Aauth%2Bname%2Bkey%2Babstr%26sfrom%3D0%26spage%3D30" target="_blank" >https://cejnm.osu.cz/corproof.php?tartkey=cjn-000000-1175&back=%2Fsearch.php%3Fquery%3DI%2526%25238217%253Bll%2Bdo%2Beverything%2Bfor%2Bhim%2B%252F%2Bher%253A%2Bthe%2Bexperiences%2Bof%2Bfamily%2Bcaregivers%2Bcaring%2Bfor%2Ba%2Bdying%2Bpatient%2Bat%2Bhome%2B%2528a%2Bphenomenological%2Bqualitative%2Bapproach%2Bin%253Aauth%2Bname%2Bkey%2Babstr%26sfrom%3D0%26spage%3D30</a>

DOI - Digital Object Identifier

<a href="http://dx.doi.org/10.15452/CEJNM.2023.14.0011" target="_blank" >10.15452/CEJNM.2023.14.0011</a>

Jazyk výsledku

angličtina

Název v původním jazyce

I’ll do everything for him / her: the experiences of family caregivers caring for a dying patient at home (a phenomenological qualitative approach

Popis výsledku v původním jazyce

he aim was to understand the lived experiences of family caregivers caring for a dying patient at home. Design: A qualitative phenomenological approach was used. Methods: Data were collected between September and December 2018. Data collection was took the form of in-depth interviews with family caregivers (n = 4), followed by the use of interpretative phenomenological analysis (IPA). Results: Five main themes were identified in terms of which family caregivers described their experience: the Role of caregiver; I’ll do everything for him / her; Support; “Time out” after death; and Benefits of care. The family caregivers had to establish their new caregiver roles, often they were the mainstay of the whole family. In the various areas of care they did everything for the dying person. They experienced pain, mental and physical burdens, and doubts, and spirituality was vital to them. It was important to experience support from different sources. After this experience, the caregivers needed time to release emotions after the death. Overall, the caregivers came to regard this experience as beneficial: revealing other priorities, increasing time spent with family, clarifying relationships, and changing attitudes and values. Conclusion: The study offers a unique insight into family caregivers’ experiences in the Czech Republic. In confirmation of previous results, experiences are generally similar for all caregivers and pointto a need for significant improvement in the quality of support and assistance from health professionals and support from family members, particularly in the areas of practical demonstration of care, the expression of condolences, provision of pain medication, handling of formalities related to the death of a loved one (e.g., when arranging the death certificate and widow’s pension), and the sharing of emotions as they occur.

Název v anglickém jazyce

I’ll do everything for him / her: the experiences of family caregivers caring for a dying patient at home (a phenomenological qualitative approach

Popis výsledku anglicky

he aim was to understand the lived experiences of family caregivers caring for a dying patient at home. Design: A qualitative phenomenological approach was used. Methods: Data were collected between September and December 2018. Data collection was took the form of in-depth interviews with family caregivers (n = 4), followed by the use of interpretative phenomenological analysis (IPA). Results: Five main themes were identified in terms of which family caregivers described their experience: the Role of caregiver; I’ll do everything for him / her; Support; “Time out” after death; and Benefits of care. The family caregivers had to establish their new caregiver roles, often they were the mainstay of the whole family. In the various areas of care they did everything for the dying person. They experienced pain, mental and physical burdens, and doubts, and spirituality was vital to them. It was important to experience support from different sources. After this experience, the caregivers needed time to release emotions after the death. Overall, the caregivers came to regard this experience as beneficial: revealing other priorities, increasing time spent with family, clarifying relationships, and changing attitudes and values. Conclusion: The study offers a unique insight into family caregivers’ experiences in the Czech Republic. In confirmation of previous results, experiences are generally similar for all caregivers and pointto a need for significant improvement in the quality of support and assistance from health professionals and support from family members, particularly in the areas of practical demonstration of care, the expression of condolences, provision of pain medication, handling of formalities related to the death of a loved one (e.g., when arranging the death certificate and widow’s pension), and the sharing of emotions as they occur.

Druh

J_SC - Článek v periodiku v databázi SCOPUS

CEP obor

—

OECD FORD obor

30311 - Medical ethics

Projekt

—

Návaznosti

S - Specificky vyzkum na vysokych skolach

Rok uplatnění

2023

Kód důvěrnosti údajů

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Název periodika

Central European Journal of Nursing and Midwifery

ISSN

2336-3517

e-ISSN

—

Svazek periodika

14

Číslo periodika v rámci svazku

3

Stát vydavatele periodika

CZ - Česká republika

Počet stran výsledku

13

Strana od-do

943-955

Kód UT WoS článku

—

EID výsledku v databázi Scopus

2-s2.0-85175724478