Family Experiences with the Upbringing and Education of a Child with Congenital Malformations, Focusing on the Conditions of an Inclusive School Environment

Kód výsledku v IS VaVaI

<a href="https://www.isvavai.cz/riv?ss=detail&h=RIV%2F61989592%3A15410%2F22%3A73613049" target="_blank" >RIV/61989592:15410/22:73613049 - isvavai.cz</a>

Výsledek na webu

<a href="https://www.mdpi.com/2227-7102/12/5/362/htm?adlt=strict&toWww=1&redig=B8A917A7EABC48AE86F76A1CC31328EC" target="_blank" >https://www.mdpi.com/2227-7102/12/5/362/htm?adlt=strict&toWww=1&redig=B8A917A7EABC48AE86F76A1CC31328EC</a>

DOI - Digital Object Identifier

<a href="http://dx.doi.org/10.3390/educsci12050362" target="_blank" >10.3390/educsci12050362</a>

Jazyk výsledku

angličtina

Název v původním jazyce

Family Experiences with the Upbringing and Education of a Child with Congenital Malformations, Focusing on the Conditions of an Inclusive School Environment

Popis výsledku v původním jazyce

The birth of a child with congenital malformation and serious illness impacts the experiences of all family members and the educational process, but there are only rare descriptions of such cases in the literature. The aim of this study is to understand better the lived experiences of a Czech family who have a child with congenital malformations with a focus on his education in an inclusive environment. The study is based on van Manen&apos;s methodology and autobiographic (or semi-structured) interviews with Karl (19), his mother (46), and his father (49). Data were analyzed for every participant separately: the mother-repeated challenges associated with increasing new health complications, discomfort of son, school support, the future, optimism, and gratefulness; the father-comprehensive support of the son, including all family; Karl-concealment of disability, difficulties associated with disability, participation, school support, relationship with peers, and the future. Based on the results of this case study, for the education of students with congenital malformation and illness, we recommend including parents, healthcare professionals, and school staff in the mutual teamwork; adapting the timetables and spatial arrangements at school; and coordinating the educational process with necessary interventions.

Název v anglickém jazyce

Family Experiences with the Upbringing and Education of a Child with Congenital Malformations, Focusing on the Conditions of an Inclusive School Environment

Popis výsledku anglicky

The birth of a child with congenital malformation and serious illness impacts the experiences of all family members and the educational process, but there are only rare descriptions of such cases in the literature. The aim of this study is to understand better the lived experiences of a Czech family who have a child with congenital malformations with a focus on his education in an inclusive environment. The study is based on van Manen&apos;s methodology and autobiographic (or semi-structured) interviews with Karl (19), his mother (46), and his father (49). Data were analyzed for every participant separately: the mother-repeated challenges associated with increasing new health complications, discomfort of son, school support, the future, optimism, and gratefulness; the father-comprehensive support of the son, including all family; Karl-concealment of disability, difficulties associated with disability, participation, school support, relationship with peers, and the future. Based on the results of this case study, for the education of students with congenital malformation and illness, we recommend including parents, healthcare professionals, and school staff in the mutual teamwork; adapting the timetables and spatial arrangements at school; and coordinating the educational process with necessary interventions.

Druh

J_imp - Článek v periodiku v databázi Web of Science

CEP obor

—

OECD FORD obor

50302 - Education, special (to gifted persons, those with learning disabilities)

Projekt

—

Návaznosti

I - Institucionalni podpora na dlouhodoby koncepcni rozvoj vyzkumne organizace

Rok uplatnění

2022

Kód důvěrnosti údajů

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Název periodika

Education Sciences

ISSN

2227-7102

e-ISSN

—

Svazek periodika

12

Číslo periodika v rámci svazku

5

Stát vydavatele periodika

CH - Švýcarská konfederace

Počet stran výsledku

14

Strana od-do

362

Kód UT WoS článku

000801559900001

EID výsledku v databázi Scopus

2-s2.0-85131095290