Specifics of Education of Children with Spinal Muscular Atrophy

Kód výsledku v IS VaVaI

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Výsledek na webu

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DOI - Digital Object Identifier

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Jazyk výsledku

angličtina

Název v původním jazyce

Specifics of Education of Children with Spinal Muscular Atrophy

Popis výsledku v původním jazyce

The school represents a natural social environment in which children make use of their potential and establish relationships with peers. Therefore, it plays a very important role in the life of children and affects the quality of their life. The education of a child with spinal muscular atrophy is always based on the level of the child’s preserved abilities. The primary task in education is to provide technical compensation for the loss of movement and use appropriate interventions to ensure the social aspects of inclusion. In some children with a more severe course of the disease, it is necessary to provide assistance that includes healthcare aspects. Although a child with SMA faces many psychosocial challenges, other actors in school can influence how the child addresses them. Therefore, the task of all actors in school is to try to create a safe environment that respects and supports the uniqueness of every pupil including those with spinal muscular atrophy and provides a positive climate for the child’s adaptation and a successful educational process. This theoretical paper presents the specifics of education of children and adolescents with spinal muscular atrophy for whom regular school attendance is not practicable. The paper presents the main topics related to the education of children with spinal muscular atrophy including their special educational needs as well as the practical knowledge and social-emotional aspects in the education of this target group.

Název v anglickém jazyce

Specifics of Education of Children with Spinal Muscular Atrophy

Popis výsledku anglicky

The school represents a natural social environment in which children make use of their potential and establish relationships with peers. Therefore, it plays a very important role in the life of children and affects the quality of their life. The education of a child with spinal muscular atrophy is always based on the level of the child’s preserved abilities. The primary task in education is to provide technical compensation for the loss of movement and use appropriate interventions to ensure the social aspects of inclusion. In some children with a more severe course of the disease, it is necessary to provide assistance that includes healthcare aspects. Although a child with SMA faces many psychosocial challenges, other actors in school can influence how the child addresses them. Therefore, the task of all actors in school is to try to create a safe environment that respects and supports the uniqueness of every pupil including those with spinal muscular atrophy and provides a positive climate for the child’s adaptation and a successful educational process. This theoretical paper presents the specifics of education of children and adolescents with spinal muscular atrophy for whom regular school attendance is not practicable. The paper presents the main topics related to the education of children with spinal muscular atrophy including their special educational needs as well as the practical knowledge and social-emotional aspects in the education of this target group.

Druh

D - Stať ve sborníku

CEP obor

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OECD FORD obor

50302 - Education, special (to gifted persons, those with learning disabilities)

Projekt

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Návaznosti

S - Specificky vyzkum na vysokych skolach

Rok uplatnění

2023

Kód důvěrnosti údajů

S - Úplné a pravdivé údaje o projektu nepodléhají ochraně podle zvláštních právních předpisů

Název statě ve sborníku

Proceedings of VIAC 2023

ISBN

978-80-88203-31-5

ISSN

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e-ISSN

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Počet stran výsledku

6

Strana od-do

8-13

Název nakladatele

Czech Institute of Academic Education z.s.

Místo vydání

Praha

Místo konání akce

Virtual

Datum konání akce

17. 2. 2023

Typ akce podle státní příslušnosti

WRD - Celosvětová akce

Kód UT WoS článku

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